Marfan Trust

Chris's Story

When an overheard conversation saves a life

13 May 2021

Let's Start a Conversation about Marfan Syndrome!

22 Apr 2021

Walking in the shadow of our namesake!

1 Apr 2021

In this, the grand finale to Marfan Awareness Month we put you, our supporters, in the spotlight!

1 Mar 2021

Never was the need for greater awareness made more tragically apparent

25 Feb 2021

This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition

16 Feb 2021

This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome

9 Feb 2021

Our campaign concludes on a note of hope with a story emblematic of the life-enhancing role played by research

11 Dec 2020

Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.

19 Nov 2020