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Category: Supporter Stories
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Anecdotes and Antidotes
Dr Childs Casebook
Marfan Awareness Month
Marfan Matters Magazine
Marfan Trust News
Useful Information - Other
Running for a Friend
3 Oct 2022
Lana's Story: a Tale of Three Sisters
Lana's Long Run
26 Sep 2022
A newly diagnosed Marfan with a bright future
31 Aug 2022
A Muddy Marfan Challenge: Helen's Quest
Helen faces her fears!
26 Aug 2022
Liam loved life and lived fully
22 Aug 2022
a life less ordinary
16 Aug 2022
Lucy's Story - The Critique of My Marfan Physique Part IV
by Lucy-Alexandra Atkinson
18 Jul 2022
A little Marf and her Mum
11 Jul 2022
Climbing for a Cause
Intrepid 13-year-old George faces his biggest fears for the Marfan Trust
27 Jun 2022
Stamp for Marfan!
Postage makes pounds for the Marfan Trust
20 Jun 2022
Never was there another who lived so fully
13 Jun 2022
My Life with Marfan Syndrome
28 Mar 2022
Marfan and Me
by Sarah Nuttman
14 Mar 2022
When an overheard conversation saves a life
13 May 2021
Martyn's Story: How Can I Help You?
Let's Start a Conversation about Marfan Syndrome!
22 Apr 2021
Stuart's Story - A Unique Journey
Walking in the shadow of our namesake!
1 Apr 2021
Marfan Awareness Month: Our Supporters in the Spotlight!
In this, the grand finale to Marfan Awareness Month we put you, our supporters, in the spotlight!
1 Mar 2021
Natasha's Story: Marfan Awareness Month
Never was the need for greater awareness made more tragically apparent
25 Feb 2021
Christopher’s Story: Marfan Awareness Month
This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition
16 Feb 2021
'Awareness Saves Lives: Wayne & Lewis' Story'
This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome
9 Feb 2021
Don't Look Back
Our campaign concludes on a note of hope with a story emblematic of the life-enhancing role played by research
11 Dec 2020
How Did The Sonalee Laboratory Come About
Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.
19 Nov 2020
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
or by phone on + 44 (0)333 011 5256
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