Skip to title
Skip to main content
We gather anonymised analytics data on website usage unless you opt out.
OK
Opt out
Log in
Donate
About
Resources
Events
News
Membership
Get Involved
Shop
Donate
News
Category: Supporter Stories
Skip to main content
Categories
Anecdotes and Antidotes
Articles
Bereavement Advice
Blog
Conferences
COVID-19
Dr Childs Casebook
Fundraising Campaigns
Fundraising News
Job Vacancies
Marfan Awareness Month
Marfan Matters Magazine
Marfan Syndrome
Marfan Trust News
Newsletters
Pregnancy
Research News
Supporter Stories
Useful Information - Other
Vacancies
Stamp for Marfan!
Postage makes pounds for the Marfan Trust
20 Jun 2022
James Griffin
Never was there another who lived so fully
13 Jun 2022
Alan's Story
My Life with Marfan Syndrome
28 Mar 2022
Marfan and Me
by Sarah Nuttman
14 Mar 2022
Chris's Story
When an overheard conversation saves a life
13 May 2021
Martyn's Story: How Can I Help You?
Let's Start a Conversation about Marfan Syndrome!
22 Apr 2021
Stuart's Story - A Unique Journey
Walking in the shadow of our namesake!
1 Apr 2021
Marfan Awareness Month: Our Supporters in the Spotlight!
In this, the grand finale to Marfan Awareness Month we put you, our supporters, in the spotlight!
1 Mar 2021
Natasha's Story: Marfan Awareness Month
Never was the need for greater awareness made more tragically apparent
25 Feb 2021
Christopher’s Story: Marfan Awareness Month
This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition
16 Feb 2021
'Awareness Saves Lives: Wayne & Lewis' Story'
This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome
9 Feb 2021
Don't Look Back
Our campaign concludes on a note of hope with a story emblematic of the life-enhancing role played by research
11 Dec 2020
How Did The Sonalee Laboratory Come About
Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.
19 Nov 2020
Facebook
Twitter
Instagram
YouTube
Subscribe
Contact
Privacy Policy
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
[email protected]
or by phone on + 44 (0)333 011 5256
Log in
| Powered by
White Fuse