Zoe and her Art

National Volunteers' Week
7 Jun 2026

Growing Up with Marfan Syndrome: A Brother's Perspective

by Henry Odong
5 Jun 2026

Tal Golesworthy in Conversation

Measurements and Genetics
1 Jun 2026

Heatwaves and INR Levels

25 May 2026

For Adam

The Three Peaks Challenge
20 May 2026

Niccolo Paganini

11 May 2026

Peter Mayhew

The defining embodiment of Chewbacca
2 May 2026

Navigating Benefits from a Patient's Perspective

by Sydney
20 Apr 2026

Edith Sitwell

A singular poet with Marfan syndrome
13 Apr 2026

A Marathon for Marfan

10 Apr 2026

Lily's Easter Surprise

A chocolate challenge
8 Apr 2026

Professor Rodney Grahame

A tribute
8 Apr 2026

Loeys-Dietz Syndrome: From Rare to Recognised?

See the Signs, Save a Life!
31 Mar 2026

Mary, Queen of Scots

Did the enigmatic, controversial monarch have Marfan syndrome?
30 Mar 2026

You Can Make A Difference!

From patient to teacher - how you can educate the professional
27 Mar 2026

Life with a Connective Disorder

by Scott Stowell
25 Mar 2026

Hans Christian Andersen

Did the creator of fantastical fairy tales have Marfan syndrome?
23 Mar 2026

Gastrointestinal Symptoms in MFS & LDS

21 Mar 2026

Marfan Syndrome v Loeys-Dietz Syndrome

18 Mar 2026

Raising Professional Awareness

18 Mar 2026
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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