Dr Child's Casebook: Difficult Passage

26 Sep 2023
Members only

Marfan Trust Guide for Schools and Colleges

Our one-stop booklet is out today
4 Sep 2023

Laura's Story

25 Aug 2023

Dr Child's Casebook: Infection Trap

Should persistently infected tonsils be removed?
22 Aug 2023
Members only

The Psychosocial Aspects of Marfan Syndrome

Please complete our one-off questionnaire to help us help you
14 Aug 2023

Life is a Cabaret

In memory, but also in hope of a better future
8 Aug 2023

The Path of Marfan?

The wisdom of preventative medication
31 Jul 2023
Members only

Research Update

26 Jul 2023

Pectus Update

A new approach to the treatment of pectus problems
26 Jul 2023

Marfan Matters: Spring/Summer Newsletter

Bursting with news ...
26 Jul 2023

Summer Student Research: Neonatal Marfan Syndrome

Interview with Elsa Harte
21 Jul 2023

Lucy's Blog: Part 7

16 Jul 2023

Dr Child's Casebook: Marfan and Music

When painful joints interrupt the marriage of Marfan and Music
11 Jul 2023
Members only

Dr Child's Casebook: The Price of Life

Everything comes at a cost ...
30 Jun 2023

Dr Child's Casebook: Talking Marfan Syndrome

When talking becomes painful
25 Jun 2023
Members only

Chancey and Isabella

A new (Mar)friendship
21 Jun 2023

Dr Child's Casebook: Pain Perspective

When is pain Marfan associated?
18 Jun 2023
Members only
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
Log in | Powered by White Fuse