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NEWSFLASH!!!
February Marks Marfan Awareness Month!
Follow the link to our Marfan Awareness Month Page, a trove of useful and interesting material.
Marfan Awareness Month
Julie's Story
When did you first hear of Marfan syndrome?
2 Feb 2023
#MarfanMondays: Live Long and Prosper
by Camilla Allen
30 Jan 2023
Extra Help?
A new diagnosis can prove costly
27 Jan 2023
Members only
Derek's Story
Raising awareness
23 Jan 2023
Dr Child's Casebook: On the Pulse
The beat of life
12 Jan 2023
Members only
#MarfanMondays: Jeremy Wins
by Dr Anne Child MD FRCP
10 Jan 2023
Isabella Spreads the Word
Young and Determined!
5 Jan 2023
Introducing our Nurse Specialist
Meet Joanne Jessup
17 Dec 2022
Sonalee Laboratory Research Update
José discusses his latest projects
17 Dec 2022
Marfan Matters: Autumn-Winter 2022 Edition
Download our Newsletter
17 Dec 2022
Growth Management in Marfan Syndrome
by Dr Samuel Sussmes
17 Dec 2022
Gareth's Story
Surveillance is critical to survival ...
15 Dec 2022
Dr Child's Casebook: Waiting Game
What to do while awaiting a diagnosis ...
12 Dec 2022
Members only
Remembering Sue Beer
An avid reader from the age of 3 despite dislocated lenses, Sue didn’t let MFS stand in her way ...
8 Dec 2022
Dr Child's Casebook: In a Snap
Often overused the knee is frequently injured
4 Dec 2022
Members only
Dr Child's Casebook: Similar But Different
Letters missing from our genetic jigsaw can cause MFS or something similar
27 Nov 2022
Members only
Dr Child's Casebook: Living with a Label
Is a connective tissue disorder just a label?
18 Nov 2022
The Critique of My Marfan Physique: Part V
by Lucy-Alexandra Atkinson
15 Nov 2022
Lula's New Focus
After complex eye surgery and a horrible scare, Lula has a new clarity of vision!
10 Nov 2022
Jamie's Story
A happy healthy farmer with an undiagnosed condition
7 Nov 2022
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The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
[email protected]
or by phone on + 44 (0)333 011 5256
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