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Dr Child's Casebook: Diverted Focus
After seemingly successful eye surgery, a supporter is experiencing visual disturbances ...
4 Aug 2022
Members only
Dr Child's Casebook: Heat in the Heart
A recent heatwave put life on hold but can it also endanger life?
27 Jul 2022
Members only
Dressing Tall
The long and the short of it is ...
25 Jul 2022
Dr Child's Casebook: Parallel Connections
In the absence of an LDS support group, patients turn to us for advice
20 Jul 2022
Members only
Lucy's Story - The Critique of My Marfan Physique Part IV
by Lucy-Alexandra Atkinson
18 Jul 2022
Dr Child's Casebook: The Bottom Line
Is surgery appropriate?
14 Jul 2022
Members only
Amiyah's Story
A little Marf and her Mum
11 Jul 2022
Dr Child's Casebook: Spinal Conundrum
When to medically intervene ?
7 Jul 2022
Members only
Books for Children
by Sophia Kazmi
4 Jul 2022
Research Update: Loeys-Dietz Syndrome
by Amy O'Reilly
4 Jul 2022
Marfan Matters Magazine: Summer 2022
Download your newsletter now
3 Jul 2022
School Risk Assessment & Recommendations
by the relative of a Marfan teenager
3 Jul 2022
Dr Child's Casebook: With Every Breath
World Pneumothorax Day
30 Jun 2022
Climbing for a Cause
Intrepid 13-year-old George faces his biggest fears for the Marfan Trust
27 Jun 2022
Dr Child's Casebook: One a Day?
The science of supplements
22 Jun 2022
Members only
Stamp for Marfan!
Postage makes pounds for the Marfan Trust
20 Jun 2022
Dr Child's Casebook: Cause for Concern?
Is a small but sudden leap in one's aortic reading necessarily alarming?
15 Jun 2022
Members only
James Griffin
Never was there another who lived so fully
13 Jun 2022
Dr Child's Casebook: Is There Something I Should Know?
Do I have a connective tissue disorder and if so, should I know?
9 Jun 2022
Members only
George Franks-Herbert
A short life lived brightly
6 Jun 2022
Page 1 of 12
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The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
[email protected]
or by phone on + 44 (0)333 011 5256
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