CAR-T Therapy & Marfan Syndrome

15 Jan 2026

Talia's Story

14 Jan 2026

New Exercise Recommendations

for people with Marfan Syndrome
11 Jan 2026

Wayne's Story

From misdiagnosis to diagnosis
9 Jan 2026

Climbing for Josh

5 Jan 2026

Autumn/Winter Newsletter - Marfan Matters!

24 Dec 2025

The UK's Pioneering Role in Aortic Surgery

23 Dec 2025

Gene Editing, New Therapies and Marfan Syndrome

9 Dec 2025

Running for Ryan

3 Dec 2025

High-Risk Pregnancy & PEARS: A Case Series

1 Dec 2025

Taming Hypertension to Prevent Aortic Dissection

Universal Recognition of a "New Normal" Blood Pressure
25 Nov 2025

What a Diagnosis of Marfan or Loeys-Dietz Syndrome Means for You

24 Nov 2025

Marfan Trust Poster

20 Nov 2025

Marfan Syndrome & the Sibling Perspective

The Courage to Continue, by Laura Cross
10 Nov 2025

Marfan & Loeys-Dietz Information Day Videos

28 Oct 2025

Musculoskeletal Health

A one-stop webinar with Dr Hanadi Kazkaz
26 Oct 2025

Lucy's Dreams for Life

Living with a Chronic Condition
22 Oct 2025

Discussing the Increasingly Personalised Treatment of the Aorta

with Professor Christoph Nienaber
20 Oct 2025

Discussing Research at the American Society of Human Genetics

Boston: 14 - 18 October
15 Oct 2025

The Gastrointestinal Manifestations of Marfan and Loeys-Dietz Syndromes

6 Oct 2025
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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