Skip to title
Skip to main content
We gather anonymised analytics data on website usage unless you opt out.
Keep up to date with Marfan syndrome news
Skip to main content
Anecdotes and Antidotes
Dr Childs Casebook
Marfan Awareness Month
Marfan Matters Magazine
Marfan Trust News
Useful Information - Other
Dr Child's Casebook: Similar But Different
Letters missing from our genetic jigsaw can cause MFS or something similar
27 Nov 2022
Dr Child's Casebook: Living with a Label
Is a connective tissue disorder just a label?
18 Nov 2022
The Critique of My Marfan Physique: Part V
by Lucy-Alexandra Atkinson
15 Nov 2022
Lula's New Focus
After complex eye surgery and a horrible scare, Lula has a new clarity of vision!
10 Nov 2022
A happy healthy farmer with an undiagnosed condition
7 Nov 2022
Dr Child's Casebook: Declaration Dilemma
Should you divulge your health condition when completing job applications?
4 Nov 2022
in pursuit of fitness with Marfan syndrome
1 Nov 2022
Dr Child's Casebook: Time to Heal?
Does a connective tissue disorder delay the healing process?
28 Oct 2022
A remarkable woman
17 Oct 2022
Dr Child's Casebook: Maturing with Marfan
Living better with Marfan syndrome
14 Oct 2022
Improving diagnosis of Marfan syndrome
10 Oct 2022
Dr Child's Casebook: Vices and Virtues
Quit the habit?
5 Oct 2022
Running for a Friend
3 Oct 2022
Dr Child's Casebook: Quest for Clarity
Obtaining diagnostic certainty
28 Sep 2022
Lana's Story: a Tale of Three Sisters
Lana's Long Run
26 Sep 2022
Dr Child's Casebook: Point Break?
Are Marfan folk susceptible to fractures?
14 Sep 2022
Dr Child's Casebook: A Process of Elimination
How to determine the root cause
8 Sep 2022
Collaborative Trials Prove Losartan/Irbesartan Effective in Marfan Syndrome
4 Sep 2022
Dr Child's Casebook: Weak at the Knees
Should my child's knock knees be treated surgically?
2 Sep 2022
A newly diagnosed Marfan with a bright future
31 Aug 2022
Page 1 of 13
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
or by phone on + 44 (0)333 011 5256
| Powered by