Growing Older with Marfan & Loeys-Dietz Syndromes

Newly Updated & Expanded
6 Jun 2025

Presenting Marfan Trust Research at the ESHG

Elsa Harte unveils her recent study of neonatal Marfan Syndrome
2 Jun 2025

Dr Child's Casebook: Backpacking with Marfan Syndrome

27 May 2025
Members only

Natasha's Story

21 May 2025

Gemma's Week in the Sonalee Laboratory

14 May 2025

Infective Endocarditis

13 May 2025

The ENT Aspects of Marfan & Loeys-Dietz Syndromes

10 May 2025

Dr Child's Casebook: Silent Pressure

30 Apr 2025
Members only

Stress Awareness Month

25 Apr 2025

Annie's London Marathon

Running for the Marfan Trust
21 Apr 2025

Darcy's Story: My PEARS Journey

A first-hand patient experience
16 Apr 2025

Treating Feet

Relieving pain ...
13 Apr 2025
Members only

Draw on your Creativity!

Enter our competition!
8 Apr 2025

Friday Fact: Endovascular Options

EVAR & TEVAR
4 Apr 2025

The Dental Aspects of Marfan & Loeys-Dietz Syndromes

31 Mar 2025

Running in Memory of Micah

31 Mar 2025

Spring Statement: What Does This Mean For Marfan & Loeys-Dietz Patients?

27 Mar 2025

Interview with PEARS Pioneer, Tal Golesworthy

25 Year Anniversary
24 Mar 2025

Newly Published Artwork by Marfan Trust Supporters

By Joy and Lucy
20 Mar 2025

Rachel's Story

Expect the Unexpected, by Rachel Linford
19 Mar 2025
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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