February Marks Marfan Awareness Month!

Follow the link to our Marfan Awareness Month Page, a trove of useful and interesting material.

Marfan Awareness Month

Julie's Story

When did you first hear of Marfan syndrome?
2 Feb 2023

#MarfanMondays: Live Long and Prosper

by Camilla Allen
30 Jan 2023

Extra Help?

A new diagnosis can prove costly
27 Jan 2023
Members only

Derek's Story

Raising awareness
23 Jan 2023

Dr Child's Casebook: On the Pulse

The beat of life
12 Jan 2023
Members only

#MarfanMondays: Jeremy Wins

by Dr Anne Child MD FRCP
10 Jan 2023

Isabella Spreads the Word

Young and Determined!
5 Jan 2023

Introducing our Nurse Specialist

Meet Joanne Jessup
17 Dec 2022

Sonalee Laboratory Research Update

José discusses his latest projects
17 Dec 2022

Marfan Matters: Autumn-Winter 2022 Edition

Download our Newsletter
17 Dec 2022

Growth Management in Marfan Syndrome

by Dr Samuel Sussmes
17 Dec 2022

Gareth's Story

Surveillance is critical to survival ...
15 Dec 2022

Dr Child's Casebook: Waiting Game

What to do while awaiting a diagnosis ...
12 Dec 2022
Members only

Remembering Sue Beer

An avid reader from the age of 3 despite dislocated lenses, Sue didn’t let MFS stand in her way ...
8 Dec 2022

Dr Child's Casebook: In a Snap

Often overused the knee is frequently injured
4 Dec 2022
Members only

Dr Child's Casebook: Similar But Different

Letters missing from our genetic jigsaw can cause MFS or something similar
27 Nov 2022
Members only

Dr Child's Casebook: Living with a Label

Is a connective tissue disorder just a label?
18 Nov 2022

The Critique of My Marfan Physique: Part V

by Lucy-Alexandra Atkinson
15 Nov 2022

Lula's New Focus

After complex eye surgery and a horrible scare, Lula has a new clarity of vision!
10 Nov 2022

Jamie's Story

A happy healthy farmer with an undiagnosed condition
7 Nov 2022
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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