Amiyah Discusses Marfan Syndrome

28 Jun 2025

9 Truths Only People with Marfan Syndrome Will Understand

Whether you’re newly diagnosed with Marfans or you’ve grown up with the condition, there might be a thing or two here that you can relate to.
25 Jun 2025

Heat, Health and Marfan Syndrome

20 Jun 2025

Ed's Story

Pushing the limits for Marfan syndrome awareness
16 Jun 2025

Navigating the Education System with Marfan & Loeys-Dietz Syndromes

Webinar Recording Available
12 Jun 2025

In Memory of Jonathan

9 Jun 2025

Growing Older with Marfan & Loeys-Dietz Syndromes

Newly Updated & Expanded
6 Jun 2025

Presenting Marfan Trust Research at the ESHG

Elsa Harte unveils her recent study of neonatal Marfan Syndrome
2 Jun 2025

Dr Child's Casebook: Backpacking with Marfan Syndrome

27 May 2025
Members only

Natasha's Story

21 May 2025

Gemma's Week in the Sonalee Laboratory

14 May 2025

Infective Endocarditis

13 May 2025

The ENT Aspects of Marfan & Loeys-Dietz Syndromes

10 May 2025

Dr Child's Casebook: Silent Pressure

30 Apr 2025
Members only

Stress Awareness Month

25 Apr 2025

Annie's London Marathon

Running for the Marfan Trust
21 Apr 2025

Darcy's Story: My PEARS Journey

A first-hand patient experience
16 Apr 2025

Dr Child's Casebook: Treating Feet

Relieving pain ...
13 Apr 2025
Members only

Draw on your Creativity!

Enter our competition!
8 Apr 2025

Friday Fact: Endovascular Options

EVAR & TEVAR
4 Apr 2025
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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