Honda Cub Tour for the Marfan Trust

22 Jul 2026

Daisy's Story

When Marfan syndrome is a family affair
20 Jul 2026

Headaches

19 Jul 2026

The Heart and Marfan Syndrome

15 Jul 2026

Julian Smith's Story

Life after open-heart surgery
14 Jul 2026

John Barnes and Hadrian's Wall

Walking for Marfan syndrome
13 Jul 2026

Dr Child's Casebook: Hernias

12 Jul 2026
Members only

Lucy and Marfan Syndrome

Lucy describes the GI complications of her condition
3 Jul 2026

Mark's Marmotte Challenge

In memory of my brother-in-law Jonathan
1 Jul 2026

Joining the Dots in Loeys-Dietz Syndrome

A new integrated care management handbook
24 Jun 2026

PIF Seal of Approval

The Patient Information Forum has awarded our charity their Tick of Approval
22 Jun 2026

Tal Golesworthy Interview

with the BBC World Service
21 Jun 2026

European Society of Human Genetics

Gothenburg 2026
18 Jun 2026

Zoe's Journey with IVF PGT

15 Jun 2026

Liverpool Aortic Symposium

12 Jun 2026

Zoe and her Art

National Volunteers' Week
7 Jun 2026

Growing Up with Marfan Syndrome: A Brother's Perspective

by Henry Odong
5 Jun 2026

Tal Golesworthy in Conversation

Measurements and Genetics
1 Jun 2026

Heatwaves and INR Levels

25 May 2026

For Adam

The Three Peaks Challenge
20 May 2026