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Useful Information - Other
Vacancies
Webinars
Vascular Ehlers-Danlos Day
The V Matters!
23 Oct 2026
Abraham Lincoln
Did the 16th President of the United States have Marfan syndrome?
21 Oct 2026
Travel Insurance
Travelling with a connective tissue disorder
18 Oct 2026
Life Insurance Insurance
for those with a Connective Tissue Disorder
18 Oct 2026
Second International Symposium in London
12 Oct 2026
Connective Cousins
The stories behind four connective tissue disorders
7 Oct 2026
Stickler Syndrome
5 Oct 2026
Joint Statement Re: UCLH and its Hypermobility Service
from EDS Support UK, the Hypermobility Syndromes Association and the Marfan Trust
29 Sep 2026
Mike's Story
28 Sep 2026
DVLA Update
27 Sep 2026
The Meeting of the Marfan European Network (M.E.N.)
Luxembourg 2026
22 Sep 2026
Ryan Willows
Aortic Dissection Awareness
21 Sep 2026
Aortic Dissection Awareness Week
13 - 19 September
15 Sep 2026
Aortic Dissection Awareness Week
13 - 19 September
14 Sep 2026
Darren's Duet!
Amplifing the Message
13 Sep 2026
Dr Antoine Marfan
The clinician behind the condition
11 Sep 2026
Raising Awareness in the Dental Chair
Our article
10 Sep 2026
The Loeys-Dietz Experience
4 Sep 2026
Rhys is Running for a Reason
In memory of his best friend, George
31 Aug 2026
Systemic Score
Diagnosing Marfan syndrome
26 Aug 2026
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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
[email protected]
or by phone on + 44 (0)333 011 5256
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