The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -

Diagnosing Marfan Syndrome

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C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY

A storied career, a genetic breakthrough, and a moment of love at first sight. In July 2024, Dr Child discussed her career with Professor Jim Al-Khalili on The Life Scientific. Here is the link to listen afresh to their fascinating conversation during which Dr Child describes the discovery of the causative gene for Marfan syndrome.

Listen to Dr Child's Interview on The Life Scientific

Events

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Marfan and Loeys-Dietz Syndrome Online Clinic

10 Jul 2026 9:00am

News

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Lucy and Marfan Syndrome

3 Jul 2026

Joining the Dots in Loeys-Dietz Syndrome

24 Jun 2026

PIF Seal of Approval

22 Jun 2026

Tal Golesworthy Interview

21 Jun 2026

Resources

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Diagnosis and Management in Childhood

21 Apr 2026

Marfan Syndrome v Hypermobile Ehlers-Danlos Syndrome

15 Apr 2026

Diagnosis & Treatment

14 Aug 2025

Chronic Fatigue

3 Apr 2025