The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -

Diagnosing Marfan Syndrome

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C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY

Setting off on a motorbike odyssey in support of the Marfan Trust, James and Terry are the Honda Cub Tour! With Land's End now behind them, they're bound for John O' Groats, following the roads less travelled and sleeping under the stars as they go. James' son, Archie, has Marfan syndrome, making this trip one of both adventure and purpose. Join us as we follow every chapter of their long journey!

Read James' Story

Events

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Marfan and Loeys-Dietz Syndrome Online Clinic

24 Jul 2026 9:00am

News

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Daisy's Story

20 Jul 2026

The Heart and Marfan Syndrome

15 Jul 2026

Lucy and Marfan Syndrome

3 Jul 2026

Joining the Dots in Loeys-Dietz Syndrome

24 Jun 2026

Resources

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Diagnosis and Management in Childhood

21 Apr 2026

Marfan Syndrome v Hypermobile Ehlers-Danlos Syndrome

15 Apr 2026

Diagnosis & Treatment

14 Aug 2025

Chronic Fatigue

3 Apr 2025