The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -

Diagnosing Marfan Syndrome

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C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY

See the Signs, Save a Life. Aortic dissection is the most serious complication that people with Marfan or Loeys-Dietz syndromes can face. Missed diagnosis still costs lives. During Aortic Dissection Awareness Week, we’re highlighting vital information everyone should know.

Read Our Resource on Aortic Dissection

Events

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Marfan and Loeys-Dietz Syndrome Online Clinic

25 Sep 2026 9:00am

News

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Aortic Dissection Awareness Week

15 Sep 2026

Dr Antoine Marfan

11 Sep 2026

Rhys is Running for a Reason

31 Aug 2026

Dr Reed E. Pyeritz

24 Aug 2026

Resources

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Diagnosis and Management in Childhood

21 Apr 2026

Marfan Syndrome v Hypermobile Ehlers-Danlos Syndrome

15 Apr 2026

Diagnosis & Treatment

14 Aug 2025

Chronic Fatigue

3 Apr 2025