The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -

Diagnosing Marfan Syndrome

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C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY

A torrent of newsy news fills our latest edition of the Marfan Matters newsletter. Research advances, patient stories, medical titbits, conference news and symposia on the horizon jostle for space, alongside discoveries, conversations and glimpses of life across our community. Hide from the heat, find a cool corner and settle in with the Spring/Summer edition of Marfan Matters.

Download our Spring-Summer Newsletter

Events

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Marfan and Loeys-Dietz Syndrome Online Clinic

4 Sep 2026 9:00am

News

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Rhys is Running for a Reason

31 Aug 2026

Systemic Score

26 Aug 2026

Dr Reed E. Pyeritz

24 Aug 2026

Appearances Can Be Deceptive

18 Aug 2026

Resources

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Diagnosis and Management in Childhood

21 Apr 2026

Marfan Syndrome v Hypermobile Ehlers-Danlos Syndrome

15 Apr 2026

Diagnosis & Treatment

14 Aug 2025

Chronic Fatigue

3 Apr 2025