The Marfan Trust - Supports those with Marfan syndrome and their families - - Provides educational information to raise awareness of Marfan syndrome - - Undertakes medical research to enable better treatment for patients -
The Marfan Trust is registered in England and Wales under charity number 328070 at
Guy Scadding Building, Dovehouse Street, London SW3 6LY.
Contact us at [email protected] or by phone on + 44 (0)20 7594 1605