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Category: Marfan Awareness Month
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Anecdotes and Antidotes
Dr Childs Casebook
Marfan Awareness Month
Marfan Matters Magazine
Marfan Trust News
Useful Information - Other
When did you first hear of Marfan syndrome?
2 Feb 2023
My Life with Marfan Syndrome
28 Mar 2022
Marfan and Me
by Sarah Nuttman
14 Mar 2022
Ralph and Bronwen
A story with a (happy) twist in the tale
7 Mar 2022
The GP Who Came To Tea
... and saved a life
25 Feb 2022
Alert Medics To The Features of MFS
Dr Naqvi describes what to watch for as a medic
24 Feb 2022
Lucy and Marfan Awareness
A condition as complex as MFS can leave you feeling isolated and alone, especially when doctors cannot help you navigate your medical journey ...
21 Feb 2022
Steffanie and Angel
15 Feb 2022
Press Release: Marfan Awareness Month
Hiding in plain sight - a deadly secret
13 Feb 2022
Signs and Symptoms: a Deadly Secret?
Recognising the visible features of Marfan syndrome is a route to identifying the invisible, potentially deadly, feature...
8 Feb 2022
Marfan Awareness Month 2022
4 Feb 2022
When an overheard conversation saves a life
13 May 2021
We Could Not Have Done It Without You!
18 Mar 2021
Marfan Awareness Month: Our Supporters in the Spotlight!
In this, the grand finale to Marfan Awareness Month we put you, our supporters, in the spotlight!
1 Mar 2021
Natasha's Story: Marfan Awareness Month
Never was the need for greater awareness made more tragically apparent
25 Feb 2021
Christopher’s Story: Marfan Awareness Month
This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition
16 Feb 2021
In Good Company
Marfan syndrome is writ large on the cinema screen, and lurks behind the sensational sounds of Broadway - here are three notable names
11 Feb 2021
Awareness Saves Lives: Wayne & Lewis' Story
This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome
9 Feb 2021
Lost in Translation - Marfan Encyclopaedia
This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!
5 Feb 2021
How Did The Sonalee Laboratory Come About
Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.
19 Nov 2020
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
or by phone on + 44 (0)333 011 5256
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