Marfan Trust

The Genetics of Marfan and Loeys-Dietz Syndromes

Webinar recording available

7 Mar 2025

The Undiagnosed 8,000

Help us to find them

28 Feb 2025

Natasha's Story

25 Feb 2025

Options in Aortic Surgery

23 Feb 2025

Jonathan

22 Feb 2025

Darcy's Story

The Beauty of Difference

20 Feb 2025

Tabitha and Tom: Fundraising for the Trust

18 Feb 2025

Marfan and the Heart

17 Feb 2025

Long Fingers Alerted Doctors to My Marfan Syndrome

11 Feb 2025

Kyphosis & Scoliosis

Marfan Awareness Month Factoid

11 Feb 2025

The Doctor Who Joined the Dots

Lucy's Story

10 Feb 2025

Mitral Valve Prolapse

Marfan Awareness Month Factoid

10 Feb 2025

An Optometrist Saved My Life

Marfan Awareness Month February 2025

3 Feb 2025

Philippa's Story

Marfan Awareness Month February 2025

3 Feb 2025

Marfan Awareness Month 2025

Let's raise awareness of Marfan & Loeys-Dietz syndromes

31 Jan 2025

The Future for Marfan Syndrome

Marfan Awareness Month - Final Chapter

1 Mar 2024

Appearances Can Be Deceptive

by Ellie Musgrave

29 Feb 2024

Mr Ulrich Rosendahl

a new Patron of the Marfan Trust

27 Feb 2024

Micah's Story

Marfan Awareness Month

26 Feb 2024

Ellie's Story

Marfan Awareness Month

25 Feb 2024

Friday Factoid: Fluoroquinolone Alert

Marfan Awareness Month

22 Feb 2024

Managing Mental Health with Marfan Syndrome

by Anna Gould

21 Feb 2024

Professor John Pepper Appointed as Patron

Marfan Awareness Month

20 Feb 2024

Lynsey's Story

Marfan Awareness Month

19 Feb 2024

Friday Factoid: ARBs v Beta-Blockers

What's the difference?

16 Feb 2024

Managing Height in Marfan Syndrome

How Tall is Too Tall?

15 Feb 2024

Zaira's Story

Connecting the dots ...

12 Feb 2024

Friday Factoid: CT Scan v MRI

What's the difference?

9 Feb 2024

Sarah's Story

Marfan (and Loeys-Dietz!) Awareness Month

8 Feb 2024

Managing the Benefits System with Marfan Syndrome

Marfan Awareness Month continues apace

5 Feb 2024

Friday Factoid: Congenital v Genetic

What's the difference?

2 Feb 2024

Marfan Awareness Month

Managing Marfan & Its Future

1 Feb 2024

Cairo-Mia's Story

Illustrating Marfan Syndrome

28 Feb 2023

Loui's Story

Appearances Can Be Deceptive

26 Feb 2023

Jonathan's Story

"If only I'd known"

22 Feb 2023

Marfan Awareness Pamphlet

Download our leaflet today

13 Feb 2023

Julie's Story

When did you first hear of Marfan syndrome?

2 Feb 2023

Alan's Story

My Life with Marfan Syndrome

28 Mar 2022

Marfan and Me

by Sarah Nuttman

14 Mar 2022

Ralph and Bronwen

A story with a (happy) twist in the tale

7 Mar 2022

The GP Who Came To Tea

... and saved a life

25 Feb 2022

Alert Medics To The Features of MFS

Dr Naqvi describes what to watch for as a medic

24 Feb 2022

Lucy and Marfan Awareness

A condition as complex as MFS can leave you feeling isolated and alone, especially when doctors cannot help you navigate your medical journey ...

21 Feb 2022

Steffanie's Story

Steffanie and Angel

15 Feb 2022

Press Release: Marfan Awareness Month

Hiding in plain sight - a deadly secret

13 Feb 2022

Signs and Symptoms: a Deadly Secret?

Recognising the visible features of Marfan syndrome is a route to identifying the invisible, potentially deadly, feature...

8 Feb 2022

Jonathan's Story

Marfan Awareness Month 2022

4 Feb 2022

Chris's Story

When an overheard conversation saves a life

13 May 2021

Thank You!

We Could Not Have Done It Without You!

18 Mar 2021

Marfan Awareness Month: Our Supporters in the Spotlight!

In this, the grand finale to Marfan Awareness Month we put you, our supporters, in the spotlight!

1 Mar 2021

Natasha's Story: Marfan Awareness Month

Never was the need for greater awareness made more tragically apparent

25 Feb 2021

Christopher’s Story: Marfan Awareness Month

This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition

16 Feb 2021

In Good Company

Marfan syndrome is writ large on the cinema screen, and lurks behind the sensational sounds of Broadway - here are three notable names

11 Feb 2021

Awareness Saves Lives: Wayne & Lewis' Story

This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome

9 Feb 2021

Lost in Translation - Marfan Encyclopaedia

This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!

5 Feb 2021

How Did The Sonalee Laboratory Come About

Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.

19 Nov 2020

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