This year's Binfield Run is a poignant one for Karen. It will be the first without her quiet and calm husband greeting her at the finishing line. John died in September 2023 of an aortic rupture. Read Karen's story.

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On Sunday 19th May I will once again be running in The Binfield 10k.This will be a hard one, the first without John being there at the finish line (he was always there - whether he wanted to be or not!)

I will though be running in his memory and as such will be running to raise donations and awareness of Marfan syndrome and The Marfan Trust.

John had Marfan syndrome and was regularly monitored at The John Radcliffe and Royal Brompton hospitals as well as having major surgery at The Brompton.

Unfortunately one of the effects on the body is heart related, affecting the aorta (the major blood vessel to the heart),causing it to enlarge.John had regular scans to measure this enlargement, but very suddenly and very sadly on the 1st September 2023 John suffered a thoracic aortic ruptured aneurysm.

John was a very quiet and calm person, not a worrier (unlike me!) and was very well thought of in his job as a Programming Director for a large pharmaceutical company, working in clinical trials.Many many people commented on how he was a “great boss” “if ever there should be a wiki page on how to be the perfect boss,Johns name should be at the top”.How he was  “a lovely gentle man” “such a warm and kind person “.

(John would hate all this by the way, never one to ‘blow his own trumpet’.)

I still find it therapeutic to talk/write about John,he was such a lovely person who I miss every day.

Thank you so much for reading and thank you in advance for any donations, I and The Marfan Trust will be truly grateful. Any donation helps both The trust and to keep the memory of my lovely lovely John alive.

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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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