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Information leaflets

Browse information leaflets for sale. Information leaflets


How Marfan syndrome relates to COVID-19.
Find out more

Support Groups

Connect with others having a similar experience to you.
Find a support group


Call on 020 7594 1605

Email us or find us on Facebook or Twitter.

Marfan Awareness Month: February 2022

"Once seen never forgotten" Passing frequently unnoticed through GP surgeries and A&Es is a potentially life-threatening condition
1 Feb 2022

Bereavement Advice

This article gathers indispensable pieces of advice forming a one-stop Guide to Grief
26 Jan 2021

Endocarditis Prevention

Endocarditis Prevention Advice & ICE Card
26 Jan 2021

Diagnosis & Treatment

Early diagnosis and treatment is vital

Living with Marfan Syndrome

Regular checks with specialists are key

Marfan Syndrome in Children

Manage children's care via a paediatrician

Medical Concerns

Medical problems, treatment & management

Regional Genetics Centres

Find UK Regional Genetics Centres

Related Disorders

Rule out related disorders with a definitive diagnosis

Starting a Family

Understand potential risks & options beforehand

Travel Insurance Information

Specialist Travel Insurance and Insurers

Useful Information - Other

Other Helpful Groups and Organisations

What are the signs of Marfan Syndrome?

Knowing the signs of Marfan syndrome can save lives
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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