News

Category: Marfan Trust News

Helpline ... a Lifeline

by Victoria Hilton
25 Jun 2021

Research in the Sonalee Lab

by Dr José Aragon-Martin
25 Jun 2021

Breaking News ... Results of the COVID-19 Pandemic Questionnaire

by Mohamed Abdelrazek, Thomas Whittaker, Dr José Aragon-Martin, Dr Anne Child
25 Jun 2021

Fundraising in Tricky Times

by Gurpreet Madan
25 Jun 2021

Research Report

Dr José Aragon-Martin turned lockdown into ‘heads down’, honing his sequencing skills, analysing his datasets and submitting two manuscript
10 Dec 2020

‘Remote’ Insight from our Chair

The Trust will be working with and for you, as we all get through this winter, the pandemic and look forward to more comfortable times
10 Dec 2020

Fundraising Update Winter 2020

As with all charities, the Marfan Trust had to transform, innovate and adapt to the changing times.
10 Dec 2020

Marfan Trust Collaborates with Cambridge University

Frozen skin cell samples donated in the past by Marfan syndrome patients are being wakened up to test new medications in the laboratory
4 Jun 2020

Marfan Research Continues

The Sonalee Lab wants to reassure everyone that we have not stopped working on our Marfan research programme
26 May 2020

Marfan Trust Update

Marfan Trust is working hard to operate the organisation as normal to continue to provide support and advice
18 May 2020

Message from Marfan Trust Chair Michael Heath

In these times of uncertainty we are all having to adjust to what were unimaginable changes to everyone’s lifestyles
1 Apr 2020

On the Home Front at Marfan HQ

On the Home Front at Marfan HQ
30 Mar 2020

A Word from the Trustees

By Michael Heath, Chair of Marfan Trust Board of Trustees
30 Mar 2020

Tribute to Dr Michael Carr, Former Marfan Trust Chair

By Anne Child MD FRCP
28 Feb 2020

Marfan Trust Now Fully Staffed

We’re delighted to announce that Victoria Hilton and Gurpreet Madan have joined the Trust as full time staff members
26 Feb 2020

Donate to us with Amazon Smile

Use Amazon Smile for all your Amazon Purchases and Amazon will donate to the Marfan Trust
6 Jan 2020

Marfan Association Merges with Marfan Trust

​The Marfan Association has sadly closed down
27 Nov 2019

Trustees' Message

At the Royal Brompton Hospital in Chelsea is the Guy Scadding Building, the new home of the Marfan Trust
27 Nov 2019

All Change for Marfan Trust Team

Along with our office move, the Marfan Trust Team has changed and will continue to evolve further.
20 Nov 2019

BHF Award Goes to Dr Anne Child

The British Heart Foundation recognised Dr Child’s contribution, in the Heart Heroes Award category
20 Nov 2019

Turn Old Postage Stamps into Donations

Did you know that used postage stamps can be sold to stamp dealers for cash to raise money for charity?
20 Nov 2019

We're Hiring

The Marfan Trust is looking to hire a Fundraising Manager. Could it be you?
30 Oct 2019

Invitation to Marfan Association Supporters

The Marfan Association to close on 30th June 2019
12 Jun 2019

Sonalee Laboratory Wish List 2019

The Sonalee Laboratory is sponsored by the Marfan Trust to undertake research in to Marfan syndrome
1 May 2019

Trustees Report Spring 2019

Although 2019 finds our Chairman Dr Michael Carr unfortunately indisposed, it is business as usual for the Trust and the Trustees
1 May 2019

Helpline Summary

In the past year the helpline has assisted 121 people
1 May 2019

Sonalee Laboratory Update

We have been able to upgrade lots of equipment, attend one of the ASHG Conferences and host a number of students
1 May 2019

Research Director Appeal

Help the Marfan Trust launch its appeal for £300,000 with a bang this #MarfanAwarenessMonth
5 Feb 2019

Mince Pies for Marfan

Yummy fundraiser to get your teeth into
27 Nov 2018
The Marfan Trust is registered in England and Wales under charity number 328070 at Guy Scadding Building, Dovehouse Street, London SW3 6LY. Contact us at [email protected] or by phone on + 44 (0)20 7594 1605
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