Vascular Ehlers-Danlos Day

The V Matters!
23 Oct 2026

Travel Insurance

Travelling with a connective tissue disorder
18 Oct 2026

Stickler Syndrome

5 Oct 2026

Navigating Benefits from a Patient's Perspective

by Sydney
20 Apr 2026

Save Your Stamps

16 Dec 2024

Insurance Advice Webinar

from The Aortic Dissection Charitable Trust
28 Mar 2024

Driving with Marfan Syndrome

31 Jan 2024

We Are Here to Help You!

Mental Health Awareness Week: 15 - 21 May 2023
17 May 2023

#MarfanMondays: Jeremy Wins

by Dr Anne Child MD FRCP
10 Jan 2023

Collaborative Trials Prove Losartan/Irbesartan Effective in Marfan Syndrome

4 Sep 2022

School Risk Assessment & Recommendations

by the relative of a Marfan teenager
3 Jul 2022

Do They Or Don't They?

Famous, and Famously Fictional, Folk with Marfan Syndrome ...or something similar
15 Mar 2022

Do They or Don’t They?

Jonathan Larson
29 Nov 2021

Lost in Translation - Marfan Encyclopaedia

This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!
5 Feb 2021