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Category: Useful Information - Other

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Mental Health Awareness Week: 15 - 21 May 2023

17 May 2023

#MarfanMondays: Jeremy Wins

by Dr Anne Child MD FRCP

10 Jan 2023

Collaborative Trials Prove Losartan/Irbesartan Effective in Marfan Syndrome

4 Sep 2022

School Risk Assessment & Recommendations

by the relative of a Marfan teenager

3 Jul 2022

Do They Or Don't They?

Famous, and Famously Fictional, Folk with Marfan Syndrome ...or something similar

15 Mar 2022

Do They or Don’t They?

Jonathan Larson

29 Nov 2021

Lost in Translation - Marfan Encyclopaedia

This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!

5 Feb 2021

The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256