Marfan Trust

Jamie's Story

A happy healthy farmer with an undiagnosed condition

7 Nov 2022

Hayley's Story

Improving diagnosis of Marfan syndrome

10 Oct 2022

Tim's Story

Running for a Friend

3 Oct 2022

Lana's Story: a Tale of Three Sisters

Lana's Long Run

26 Sep 2022

A Muddy Marfan Challenge: Helen's Quest

Helen faces her fears!

26 Aug 2022

Stamp for Marfan!

Postage makes pounds for the Marfan Trust

20 Jun 2022

Fundraiser's Feat - Stuart's Story

Story of Triumph over Adversity

21 Jan 2022

Let's Celebrate Our Supporters

Freddie's Story

25 Nov 2021

Fundraising in Tricky Times

by Gurpreet Madan

25 Jun 2021

Bereavement Advice

This article gathers indispensable pieces of advice forming a one-stop Guide to Grief

21 Jan 2021

Fundraising Update Winter 2020

As with all charities, the Marfan Trust had to transform, innovate and adapt to the changing times.

10 Dec 2020

How Did The Sonalee Laboratory Come About

Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.

19 Nov 2020

Donate to us with Amazon Smile

Use Amazon Smile for all your Amazon Purchases and Amazon will donate to the Marfan Trust

6 Jan 2020

Turn Old Postage Stamps into Donations

Did you know that used postage stamps can be sold to stamp dealers for cash to raise money for charity?

20 Nov 2019

Sonalee Laboratory Wish List 2019

The Sonalee Laboratory is sponsored by the Marfan Trust to undertake research in to Marfan syndrome

1 May 2019

Research Director Appeal

Help the Marfan Trust launch its appeal for £300,000 with a bang this #MarfanAwarenessMonth

5 Feb 2019

Mince Pies for Marfan

Yummy fundraiser to get your teeth into

27 Nov 2018

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