Marfan Trust

Lucy and Marfan Awareness

A condition as complex as MFS can leave you feeling isolated and alone, especially when doctors cannot help you navigate your medical journey ...

21 Feb 2022

by Lucy-Alexandra Atkinson

21 Oct 2021

by Lucy-Alexandra Atkinson

1 Jul 2021

By Lucy-Alexandra Atkinson

27 May 2021

Let's Start a Conversation about Marfan Syndrome!

22 Apr 2021

When your past is a blank page you are left feeling powerless. This story highlights the need for more research and awareness of Marfan syndrome

4 Dec 2020

Our guest blogger, Lucy, describes the challenges of living in near-constant pain, the main source of which is her Marfan syndrome.

8 Oct 2020

The easing of travel restrictions will prompt many to hop on a jet plane in search of sea, sun and sand. Do you have everything you need?

2 Oct 2020

Members only

Marfan syndrome can be many things, including a pain in the behind ... as Marfan warrior and prolific blogger Lucy Atkinson discovered to her horror

6 Sep 2020

Members only

Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.

5 Dec 2018

Members only