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Anecdotes and Antidotes
Dr Childs Casebook
Marfan Matters Magazine
Marfan Trust News
Useful Information - Other
The Critique of My Marfan Physique Part II
by Lucy-Alexandra Atkinson
1 Jul 2021
The Critique of My Marfan Physique
By Lucy-Alexandra Atkinson
27 May 2021
Martyn's Story: How Can I Help You?
Let's Start a Conversation about Marfan Syndrome!
22 Apr 2021
Research As Empowerment!
When your past is a blank page you are left feeling powerless. This story highlights the need for more research and awareness of Marfan syndrome
4 Dec 2020
Hiding in Plain Sight
Our guest blogger, Lucy, describes the challenges of living in near-constant pain, the main source of which is her Marfan syndrome.
8 Oct 2020
Why Comprehensive Travel Insurance is important!
The easing of travel restrictions will prompt many to hop on a jet plane in search of sea, sun and sand. Do you have everything you need?
2 Oct 2020
Marfan Syndrome Can Be a Pain in the Behind
Marfan syndrome can be many things, including a pain in the behind ... as Marfan warrior and prolific blogger Lucy Atkinson discovered to her horror
6 Sep 2020
Life in Lockdown with Marfan Syndrome
As someone with Marfan syndrome I wanted to write something useful about what life has been like in lockdown during the coronavirus pandemic
16 Jun 2020
9 Truths Only People with Marfan Syndrome Will Understand
Whether you’re newly diagnosed with Marfans or you’ve grown up with the condition, there might be a thing or two here that you can relate to.
20 Feb 2019
Going in to Labour with Marfan Syndrome
So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!
6 Dec 2018
What to Expect When You’re Pregnant with Marfan Syndrome
Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.
5 Dec 2018
The Marfan Trust is registered in England and Wales under charity number 328070 at Guy Scadding Building, Dovehouse Street, London SW3 6LY. Contact us at
or by phone on + 44 (0)20 7594 1605
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