Marfan Trust

Research As Empowerment!

When your past is a blank page you are left feeling powerless. This story highlights the need for more research and awareness of Marfan syndrome

4 Dec 2020

Our guest blogger, Lucy, describes the challenges of living in near-constant pain, the main source of which is her Marfan syndrome.

8 Oct 2020

The easing of travel restrictions will prompt many to hop on a jet plane in search of sea, sun and sand. Do you have everything you need?

2 Oct 2020

Marfan syndrome can be many things, including a pain in the behind ... as Marfan warrior and prolific blogger Lucy Atkinson discovered to her horror

6 Sep 2020

As someone with Marfan syndrome I wanted to write something useful about what life has been like in lockdown during the coronavirus pandemic

16 Jun 2020

Whether you’re newly diagnosed with Marfans or you’ve grown up with the condition, there might be a thing or two here that you can relate to.

20 Feb 2019

So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!

6 Dec 2018

Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.

5 Dec 2018