News

Category: Loeys-Dietz Syndrome

Loeys-Dietz Syndrome: From Rare to Recognised?

See the Signs, Save a Life!
31 Mar 2026

You Can Make A Difference!

From patient to teacher - how you can educate the professional
27 Mar 2026

Pectus Problems

18 Mar 2026

Alison's Story

26 Jan 2026

Wayne's Story

From misdiagnosis to diagnosis
9 Jan 2026

Taming Hypertension to Prevent Aortic Dissection

Universal Recognition of a "New Normal" Blood Pressure
25 Nov 2025

Musculoskeletal Health

A one-stop webinar with Dr Hanadi Kazkaz
26 Oct 2025

Discussing the Increasingly Personalised Treatment of the Aorta

with Professor Christoph Nienaber
20 Oct 2025

Angus' Story

10 Mar 2025
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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