"If only I'd known"
As a child ‘Jonny’ had a bad chest and asthma. At 16 he spent time on the Ear Nose and Throat Ward of his local hospital, recovering from an operation on his ear which antibiotics had failed to clear up. The ward was one that treated Marfan patients, yet Jonny remained undiagnosed during his stay while his condition hid in plain sight.Jonny’s mother, Elizabeth, has said: ““I don't ever want another mother to feel like I do and if I could save one life I would give my right arm." Elizabeth tirelessly raises awareness in memory of her son, a popular chip shop worker who died during a beer festival in Penclawwd. His cousins, Liam, Caroline and Hannah do the same. They have climbed mountains and performed many amazing feats in his memory.