With exquisite simplicity, Amiyah clarifies the complexities of Marfan syndrome and how it affects her heart and her 'wiggly worm" spine, while also showcasing some cool hand tricks. She also celebrates the beauty of individuality and pays tribute to her amazing mother, Charlotte! Watch this video!

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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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