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Category: Marfan Syndrome
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Anecdotes and Antidotes
Dr Childs Casebook
Marfan Awareness Month
Marfan Matters Magazine
Marfan Trust News
Useful Information - Other
The Critique of My Marfan Physique
By Lucy-Alexandra Atkinson
27 May 2021
Martyn's Story: How Can I Help You?
Let's Start a Conversation about Marfan Syndrome!
22 Apr 2021
In Good Company
Marfan syndrome is writ large on the cinema screen, and lurks behind the sensational sounds of Broadway - here are three notable names
11 Feb 2021
Lost in Translation - Marfan Encyclopaedia
This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!
5 Feb 2021
Psychosocial Aspects of Marfan Syndrome
“Let Marfan syndrome be the passenger on your bus, not its driver”
10 Dec 2020
Diagnosis of Marfan Syndrome
In her two-part Casebook Appearances Can Be Deceptive Dr Child discussed the misleading mimics and disguised carriers of Marfan syndrome
10 Sep 2020
Dr Child's Casebook: Appearances Can Be Deceptive – A Relative Anomaly. PART II
Making itself known in the skeletal system, Marfan syndrome is usually visible for all to see in its height supremacy
9 Sep 2020
Marfan Syndrome and Coronavirus FAQs
As COVID-19 continues and scientists race for a vaccine, we live our lives under lockdown, reliant on government and medical guidance
16 Apr 2020
Advice for Teenagers with Marfan Syndrome
We recently received the following plea for support from the anxious parent of an affected teenager
20 Nov 2019
What is Marfan Syndrome?
25% of Marfan syndrome patients are the first one affected in the family.
30 Sep 2019
Fatigue and Depression in Marfan Syndrome
A 44 year old man with Marfan syndrome rang for advice as he was falling asleep at his desk
7 May 2019
Going in to Labour with Marfan Syndrome
So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!
6 Dec 2018
What to Expect When You’re Pregnant with Marfan Syndrome
Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.
5 Dec 2018
Incidence of Pneumothorax in Marfan Syndrome
What is the correct incidence of pneumothorax (free air in the chest cavity that causes the lungs to collapse) in Marfan syndrome?
9 Oct 2018
Q&A: Joint and Muscle Problems in Marfan Syndrome
Dr Anne Child and Professor Rodney Grahame explain all
29 May 2017
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
or by phone on + 44 (0)333 011 5256
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