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Category: Marfan Syndrome
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Useful Information - Other
Vacancies
Webinars
World Mental Health Day
10 October 2024
10 Oct 2024
A Guide to the Eye in Marfan Syndrome
Our new booklet is out today
30 Sep 2024
European Society of Cardiology - New Guidelines
Paedia†ric Aortopa†hy & Marfan Syndrome
24 Sep 2024
Friday Fact: Z-Score
20 Sep 2024
Aortic Dissection Awareness Day
Hurtling back through the centuries to 1760 ...
19 Sep 2024
Study of CT Scans and Aortic Measurements
Aortic Dissection Awareness Week
18 Sep 2024
Aortic Valve
Aortic Dissection Awareness Week: 16 - 23 September 2024
17 Sep 2024
Congress of the Marfan Europe Network
Together We Can!
17 Sep 2024
Aortic Dissection Awareness Week
16 - 23 September
16 Sep 2024
Discussing Marfan Syndrome
Drs Nitha and Nayyar Naqvi on their careers & MFS
9 Sep 2024
Friday Fact - Advocating for your Child
30 Aug 2024
Friday Fact: Hypermobility
Let's discuss joint hypermobility
9 Aug 2024
Research in the Sonalee Laboratory
An update from Dr Aragon-Martin
8 Aug 2024
The Anatomy of the Aorta
8 Aug 2024
Lucy's Blog - Part 11
A new diagnosis and a new physio
15 Jul 2024
Dr Antoine Marfan
Bastille Day
14 Jul 2024
Friday Fact: Alcohol Awareness Week
5 Jul 2024
Tune in to Dr Child on The Life Scientific
Tuesday, 2 July at 9am on BBC Radio 4
1 Jul 2024
Friday Fact: Systemic Score
28 Jun 2024
World Pneumothorax Day 2024
24 Jun 2024
Friday Fact: Ghent Criteria
21 Jun 2024
Friday Fact: Marfanoid Habitus
14 Jun 2024
Friday Fact: Aortic Valve
What does it do?
7 Jun 2024
Friday Fact: Preparing for an Emergency
31 May 2024
Pectus Matters: Webinar Recording
28 May 2024
Friday Fact: 20th Anniversary of PEARS!
24 May 2024
International Patient Symposium: 31 August
Radisson Blu Edwardian, 9-13 Bloomsbury St London WC1B 3QD
23 May 2024
Friday Fact: Joint Pain in Marfan Syndrome
17 May 2024
Friday Fact: Kyphosis v. Scoliosis
What's the difference?
10 May 2024
Friday Fact: Pectus Problems
3 May 2024
Friday Fact: PEARS Procedure
What is it?
26 Apr 2024
Friday Fact: Sleep Apnoea
What is it?
19 Apr 2024
Friday Fact: Genotype v. Phenotype
What's the difference?
12 Apr 2024
Friday Fact: Infective Endocarditis
Order your alert card today
5 Apr 2024
Friday Fact: Ectopia Lentis
What is it?
29 Mar 2024
New Pamphlet Alert!
The Marfan Trust Guide to Heart Surgery
28 Mar 2024
Friday Fact: Mitral Valve Regurgitation
What is it?
22 Mar 2024
Friday Factoid: Aortic Dissection
Signs and Symptoms
15 Mar 2024
Friday Factoid: Dural Ectasia
What is it?
8 Mar 2024
Friday Factoid: Pneumothorax
Sometimes it's the first clue ...
1 Mar 2024
Appearances Can Be Deceptive
by Ellie Musgrave
29 Feb 2024
Friday Factoid: Fluoroquinolone Alert
Marfan Awareness Month
22 Feb 2024
Lynsey's Story
Marfan Awareness Month
19 Feb 2024
Friday Factoid: ARBs v Beta-Blockers
What's the difference?
16 Feb 2024
Managing Height in Marfan Syndrome
How Tall is Too Tall?
15 Feb 2024
Friday Factoid: CT Scan v MRI
What's the difference?
9 Feb 2024
Sarah's Story
Marfan (and Loeys-Dietz!) Awareness Month
8 Feb 2024
Managing the Benefits System with Marfan Syndrome
Marfan Awareness Month continues apace
5 Feb 2024
Friday Factoid: Congenital v Genetic
What's the difference?
2 Feb 2024
Marfan Awareness Month
Managing Marfan & Its Future
1 Feb 2024
Driving with Marfan Syndrome
31 Jan 2024
Friday Factoid: Heart Attack v. Aortic Dissection
What's the difference?
26 Jan 2024
Friday Factoid: Echo v. ECG
What's the difference?
19 Jan 2024
Aortic Dissection Awareness Week: 17 to 23 September
Know the signs
18 Sep 2023
Pectus Update
A new approach to the treatment of pectus problems
26 Jul 2023
World Pneumothorax Day 2023
30 Jun 2023
Mitral Valve Regurgitation
What is it?
16 May 2023
Tom and Chloe
a beautiful story of love and loss
27 Apr 2023
Cairo-Mia's Story
Illustrating Marfan Syndrome
28 Feb 2023
Loui's Story
Appearances Can Be Deceptive
26 Feb 2023
Jonathan's Story
"If only I'd known"
22 Feb 2023
Marfan Awareness Pamphlet
Download our leaflet today
13 Feb 2023
Lucy's Blog: The Critique of my Marfan Physique
By Lucy-Alexandra Atkinson
27 May 2021
Martyn's Story: How Can I Help You?
Let's Start a Conversation about Marfan Syndrome!
22 Apr 2021
In Good Company
Marfan syndrome is writ large on the cinema screen, and lurks behind the sensational sounds of Broadway - here are three notable names
11 Feb 2021
Lost in Translation - Marfan Encyclopaedia
This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!
5 Feb 2021
Psychosocial Aspects of Marfan Syndrome
“Let Marfan syndrome be the passenger on your bus, not its driver”
10 Dec 2020
Members only
Diagnosis of Marfan Syndrome
In her two-part Casebook Appearances Can Be Deceptive Dr Child discussed the misleading mimics and disguised carriers of Marfan syndrome
10 Sep 2020
Members only
Dr Child's Casebook: Appearances Can Be Deceptive – A Relative Anomaly. PART II
Making itself known in the skeletal system, Marfan syndrome is usually visible for all to see in its height supremacy
9 Sep 2020
Members only
Marfan Syndrome and Coronavirus FAQs
As COVID-19 continues and scientists race for a vaccine, we live our lives under lockdown, reliant on government and medical guidance
16 Apr 2020
Advice for Teenagers with Marfan Syndrome
We recently received the following plea for support from the anxious parent of an affected teenager
20 Nov 2019
Members only
What is Marfan Syndrome?
25% of Marfan syndrome patients are the first one affected in the family.
30 Sep 2019
Members only
Fatigue and Depression in Marfan Syndrome
A 44 year old man with Marfan syndrome rang for advice as he was falling asleep at his desk
7 May 2019
Members only
Going in to Labour with Marfan Syndrome
So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!
6 Dec 2018
Members only
What to Expect When You’re Pregnant with Marfan Syndrome
Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.
5 Dec 2018
Members only
Incidence of Pneumothorax in Marfan Syndrome
What is the correct incidence of pneumothorax (free air in the chest cavity that causes the lungs to collapse) in Marfan syndrome?
9 Oct 2018
Members only
Q&A: Joint and Muscle Problems in Marfan Syndrome
Dr Anne Child and Professor Rodney Grahame explain all
29 May 2017
Members only
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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
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or by phone on + 44 (0)333 011 5256
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