News

Category: COVID-19

Myths and Misinformation Debunked! The Vaccine, Explained

A recipient of the vaccine herself, Dr Anne Child dispels disinformation and sets things straight
18 Feb 2021

Dr Child's Casebook: Bittersweet Blessings?

Anxious about potential side effects of the COVID vaccine, a Marfan supporter finds his worries dispelled by Dr Child
10 Feb 2021

Dr Child's Casebook: Right of Way

Unknown Priority - SHOULD those with Marfan syndrome receive the vaccine ahead of the general population
9 Dec 2020

Latest Statement on Covid-19 from The Marfan Trust

With the newly introduced Rule of Six, we assess what you can – and can’t! – do when meeting friends and family
11 Sep 2020

Dexamethasone – A Panacea?

From humble steroid to heralded superhero, Dexamethasone is a basic anti-inflammatory recently catapulted into the headlines
23 Jul 2020

Dr Child's Casebook: To Jab Or Not To Jab During Covid-19

One patient asked on behalf of her teenage son and we have shared the exchange below while protecting the family’s identity
24 Jun 2020

Life in Lockdown with Marfan Syndrome

As someone with Marfan syndrome I wanted to write something useful about what life has been like in lockdown during the coronavirus pandemic
16 Jun 2020

Dr Child's Covid Casebook

Every day while ensconced in the comfort of her virtual consulting room Dr Child encounters a new conundrum posed by a member of our Marfan community.
19 May 2020

Marfan Trust Update

Marfan Trust is working hard to operate the organisation as normal to continue to provide support and advice
18 May 2020

COVID-19 Advice for Pregnant Women

​This advice is based on a combination of available evidence, good practice, and expert advice
30 Apr 2020

Marfan Syndrome and Coronavirus FAQs

​As COVID-19 continues and scientists race for a vaccine, we live our lives under lockdown, reliant on government and medical guidance
16 Apr 2020

A Word from the Trustees

By Michael Heath, Chair of Marfan Trust Board of Trustees
30 Mar 2020

Marfan Trust Statement on COVID-19

​As Coronavirus continues, the Marfan Trust would like to provide some guidance to our community
17 Mar 2020
The Marfan Trust is registered in England and Wales under charity number 328070 at Guy Scadding Building, Dovehouse Street, London SW3 6LY. Contact us at [email protected] or by phone on + 44 (0)20 7594 1605
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