Newly Published Scientific Paper

Marfan syndrome: diagnosis and management in childhood
11 Feb 2026

Susan's Story

11 Feb 2026

A Life-Saving Visit to the Optometrist

Helen's Story
7 Feb 2026

Zoe's Story

5 Feb 2026

Talia and Esmay

Two generations of Marfan syndrome
3 Feb 2026

Marfan Awareness Month

February 2026
31 Jan 2026

Alison's Story

26 Jan 2026

Anne Willmott-Speller

Remembering Anne
20 Jan 2026

Drawing Life with Marfan Syndrome

by Lucy Atkinson
19 Jan 2026

CAR-T Therapy & Marfan Syndrome

15 Jan 2026

Talia's Story

14 Jan 2026

Wayne's Story

From misdiagnosis to diagnosis
9 Jan 2026

Climbing for Josh

5 Jan 2026

Autumn/Winter Newsletter - Marfan Matters!

24 Dec 2025

The UK's Pioneering Role in Aortic Surgery

23 Dec 2025

Gene Editing, New Therapies and Marfan Syndrome

9 Dec 2025

High-Risk Pregnancy & PEARS: A Case Series

1 Dec 2025

Taming Hypertension to Prevent Aortic Dissection

Universal Recognition of a "New Normal" Blood Pressure
25 Nov 2025

What a Diagnosis of Marfan or Loeys-Dietz Syndrome Means for You

24 Nov 2025

Marfan Trust Poster

20 Nov 2025