A visit to the optometrist made sense of a lifetime of symptoms for Helen. Tall and slender, she is hypermobile and has scoliosis. Recognising these clinical features, her optometrist joined the dots, and what began as a routine visit saved Helen’s life.

Read Helen's Story

Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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