Marking the memory of much-missed brother and friend on his birthday. On 4 January 2026, Josh England would have turned 31, but he died earlier this year following a late diagnosis of Marfan syndrome. To honour their beloved Josh, his brother and best friend will be completing the Three Peaks Challenge. 

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JOSH ENGLAND 1995-2025 by his mother, Margaret England

Josh was born on January 4th 1995 a beautiful healthy baby.

After a happy healthy childhood he grew into a very tall gangly teenager. We joked about his height as I’m only 5ft. A few illness included  excessive headaches leaving his eyesight very poor put down to a mild case of meningitis. Painful joints put down to growing pains! But he grew into a healthy young man and completed a degree in Business Management.  

Josh loved to play football and trained our local football team  under 11s. The kids loved him and his dry sense of humour. But Josh loved to travel and set off to see Thailand and surrounding countries: he always returned home. He moved to the outer Hebrides living on the Isle of Harris and loved every minute. He came home in November 2024  after developing a bad pain in his back. This was the start of our nightmare. 


After being admitted to hospital as he couldn’t breathe. He was diagnosed with kidney infection and then pneumonia! He was moved to intensive care where ONE doctor recognised it as Marfan Syndrome. We had never heard of it and nor had his two siblings.

After an aorta replacement he had a stent fitted in an elephants trunk (artery). Then he had an aneurysm at the end of the artery he then had a Candy Plug fitted, only the second time this operation had been done in the UK. He was still very poorly his heart was enlarged and he needed a heart transplant but sadly all his arteries had been worn out and a transplant was impossible. He was given three weeks to live!! 

Josh was treated in 3 hospitals and each hospital worked so hard to help him survive but sadly none could. 

In that 3 weeks we had fun in the hospital he had friends arriving from all corners of the world. We had food parties as his appetite was still good. The staff were brilliant but into our third week he was sleeping more and more. Finally on Monday May 26th 2025 at 5.26pm he slipped quietly away. Our 6 months of hell had come to an end and my beautiful boy had died at the young age of 30years old with his whole life that should have been before him.

I had put on his resting place

‘no greater pain have I felt than when your heart stopped beating and mine carried on’

                      ********


This is Josh smiling as usual.

Thank you for this opportunity to play tribute to Josh I really appreciate it. 

I hope for future sufferers Marfans can be recognised earlier and  symptoms can be picked up sooner. 

Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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