Rachel's Story

Mental health
23 Feb 2026

Andrew Scadding

A tribute
19 Feb 2026

Dyani's Story

17 Feb 2026

Project for Awesome

Vote for the Marfan Trust!
13 Feb 2026

Susan's Story

11 Feb 2026

Newly Published Scientific Paper

Marfan syndrome: diagnosis and management in childhood
11 Feb 2026

A Life-Saving Visit to the Optometrist

Helen's Story
7 Feb 2026

Zoe's Story

5 Feb 2026

Talia and Esmay

Two generations of Marfan syndrome
3 Feb 2026

Marfan Awareness Month

February 2026
31 Jan 2026

Alison's Story

26 Jan 2026

Anne Willmott-Speller

Remembering Anne
20 Jan 2026

Drawing Life with Marfan Syndrome

by Lucy Atkinson
19 Jan 2026

CAR-T Therapy & Marfan Syndrome

15 Jan 2026

Talia's Story

14 Jan 2026

Wayne's Story

From misdiagnosis to diagnosis
9 Jan 2026

Climbing for Josh

5 Jan 2026

Autumn/Winter Newsletter - Marfan Matters!

24 Dec 2025

The UK's Pioneering Role in Aortic Surgery

23 Dec 2025

Gene Editing, New Therapies and Marfan Syndrome

9 Dec 2025