Marfan Awareness Month
February 2026
Rare and often unseen, Marfan syndrome is too often overlooked and even when diagnosed, vital needs remain unmet. Our nationwide survey has revealed the symptoms people feel most acutely, the gaps in healthcare, and the support that remains unfulfilled. Let's Act Now: See the Signs and Save a Life. Follow our posts, distribute our leaflets and put up our poster.
Turn our message into a movement and put up our poster!
Download Our Poster
Recognising the visible signs of Marfan syndrome is often easier than recognising the invisible symptoms that shape daily life. Our survey has uncovered the unseen symptoms that most affect you people with Marfan syndrome. and 58% struggle with gastrointestinal problems. In response, we have invited Dietitian Chloe Hall to lead a webinar on 25th February.
A simple sticker can save a life. Buy yours today!
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Download our General Leaflet and Spread the Word
Download our Guide
