Replenishing professional awareness and keeping Marfan and Loeys-Dietz in clear clinical focus is something we routinely do. Our nurse specialist, Joanne Jessup, was invited to present a webinar to Aortic nurses, hosted by The Aortic Dissection Charitable Trust. She spoke about Marfan and Loeys Dietz syndromes, the importance of early diagnosis and evidence-based care to ensure great outcomes for people living with these conditions. Most importantly, she emphasised the need for coordinated and holistic care.
by The Aortic Dissection Charitable Trust
We recently held a webinar for nurses and advanced practitioners that focused on syndromic causes of aortopathy and aortic dissection. This was part of our ongoing effort to share knowledge and learning among clinicians caring for people with inherited aortic disease. The session gave a clear overview of two key syndromic conditions linked to thoracic aortic aneurysm and dissection, Marfan syndrome and Loeys-Dietz syndrome, and it also highlighted the realities of care that go far beyond the aorta alone.
The webinar’s focus was to support broader thinking, spot patterns sooner and understand what good long-term care looks like for people with these conditions. For nurses, specialist practitioners and anyone interested in inherited cardiac conditions, this is an area where careful clinical work can make a real difference. Early recognition allows for better monitoring, family screening, treatment and planned care before emergencies happen.
- to read the precis of Joanne's talk, click on this link.
