Results of our Nationwide Survey

2 Mar 2026

Jonathan

Jonny was only 23
27 Feb 2026

Lyndsey's Story

Fundraising for the Marfan Trust!
26 Feb 2026

Scott's Story

Exploring his surgical options
25 Feb 2026

Maiya's Story

A vibrant young woman
24 Feb 2026

Rachel's Story

Mental health
23 Feb 2026

Andrew Scadding

A tribute
19 Feb 2026

Dyani's Story

17 Feb 2026

Project for Awesome

Vote for the Marfan Trust!
13 Feb 2026

Newly Published Scientific Paper

Marfan syndrome: diagnosis and management in childhood
11 Feb 2026

Susan's Story

11 Feb 2026

A Life-Saving Visit to the Optometrist

Helen's Story
7 Feb 2026

Zoe's Story

5 Feb 2026

Talia and Esmay

Two generations of Marfan syndrome
3 Feb 2026

Marfan Awareness Month

February 2026
31 Jan 2026

Alison's Story

26 Jan 2026

Anne Willmott-Speller

Remembering Anne
20 Jan 2026

Drawing Life with Marfan Syndrome

by Lucy Atkinson
19 Jan 2026

CAR-T Therapy & Marfan Syndrome

15 Jan 2026

Talia's Story

14 Jan 2026