Joining the Dots in Loeys-Dietz Syndrome

A new integrated care management handbook
24 Jun 2026

PIF Seal of Approval

The Patient Information Forum has awarded our charity their Tick of Approval
22 Jun 2026

Tal Golesworthy Interview

with the BBC World Service
21 Jun 2026

European Society of Human Genetics

Gothenburg 2026
18 Jun 2026

Zoe's Journey with IVF PGT

15 Jun 2026

Liverpool Aortic Symposium

12 Jun 2026

Zoe and her Art

National Volunteers' Week
7 Jun 2026

Growing Up with Marfan Syndrome: A Brother's Perspective

by Henry Odong
5 Jun 2026

Tal Golesworthy in Conversation

Measurements and Genetics
1 Jun 2026

Heatwaves and INR Levels

25 May 2026

For Adam

The Three Peaks Challenge
20 May 2026

Niccolo Paganini

11 May 2026

Peter Mayhew

The defining embodiment of Chewbacca
2 May 2026

Navigating Benefits from a Patient's Perspective

by Sydney
20 Apr 2026

Edith Sitwell

A singular poet with Marfan syndrome
13 Apr 2026

A Marathon for Marfan

10 Apr 2026

Lily's Easter Surprise

A chocolate challenge
8 Apr 2026

Professor Rodney Grahame

A tribute
8 Apr 2026

Loeys-Dietz Syndrome: From Rare to Recognised?

See the Signs, Save a Life!
31 Mar 2026

Mary, Queen of Scots

Did the enigmatic, controversial monarch have Marfan syndrome?
30 Mar 2026