Lily's Easter Surprise

A chocolate challenge
8 Apr 2026

Professor Rodney Grahame

A tribute
8 Apr 2026

Loeys-Dietz Syndrome: From Rare to Recognised?

See the Signs, Save a Life!
31 Mar 2026

Mary, Queen of Scots

Did the enigmatic, controversial monarch have Marfan syndrome?
30 Mar 2026

You Can Make A Difference!

From patient to teacher - how you can educate the professional
27 Mar 2026

Life with a Connective Disorder

by Scott Stowell
25 Mar 2026

Hans Christian Andersen

Did the creator of fantastical fairy tales have Marfan syndrome?
23 Mar 2026

Gastrointestinal Symptoms in MFS & LDS

21 Mar 2026

Marfan Syndrome v Loeys-Dietz Syndrome

18 Mar 2026

Raising Professional Awareness

18 Mar 2026

Pectus Problems

18 Mar 2026

Dr Child's Casebook: Headaches

15 Mar 2026
Members only

Susan's Story: From COPD to PACES

11 Mar 2026

Paediatric Cardiology Webinar: Recording

with Dr Nitha Naqvi
9 Mar 2026

Webinar with Dietitian Chloe Hall: Recording

Watch the recording now!
5 Mar 2026

Results of our Nationwide Survey

2 Mar 2026

Jonathan

Jonny was only 23
27 Feb 2026

Lyndsey's Story

Fundraising for the Marfan Trust!
26 Feb 2026

Scott's Story

Exploring his surgical options
25 Feb 2026

Maiya's Story

A vibrant young woman
24 Feb 2026