Managing Height in Marfan Syndrome

How Tall is Too Tall?
15 Feb 2024

Marfan Matters in Corby

Fundraising by 7formation in Corby
15 Feb 2024

Zaira's Story

Connecting the dots ...
12 Feb 2024

Friday Factoid: CT Scan v MRI

What's the difference?
9 Feb 2024

Sarah's Story

Marfan (and Loeys-Dietz!) Awareness Month
8 Feb 2024

Managing the Benefits System with Marfan Syndrome

Marfan Awareness Month continues apace
5 Feb 2024

Medical Management of Marfan Syndrome

with Consultant Cardiologist Dr Alex Pitcher
5 Feb 2024

Friday Factoid: Congenital v Genetic

What's the difference?
2 Feb 2024

Marfan Awareness Month

Managing Marfan & Its Future
1 Feb 2024

Friday Factoid: Heart Attack v. Aortic Dissection

What's the difference?
26 Jan 2024

Friday Factoid: Echo v. ECG

What's the difference?
19 Jan 2024

Dr Child's Casebook: Holistic Healing

18 Jan 2024
Members only

Medical Management of Marfan Syndrome

with Consultant Cardiologist Alex Pitcher
15 Jan 2024

Dr Child's Casebook: Muscle Matter

New Year, New FREE Casebook
5 Jan 2024

Aortic Dissection Awareness UK & Ireland

National patient charity unveils new website
19 Dec 2023

Dr Child's Casebook: Thin Protection

15 Dec 2023
Members only

Research Update

A despatch from the genetic frontier
4 Dec 2023

Marfan Matters: Autumn/Winter Edition

A winter warmer to while away the long dark evenings. Download your copy today!
4 Dec 2023
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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