Knowledge has the power to prevent. A medical diagnosis brings surveillance, and surveillance brings the opportunity to act before an emergency occurs. Ryan Willows was the inspiration at the heart of a small circle of devoted marathon runners. He died in October from an aortic dissection, with Marfan syndrome the probable cause. In Ryan's memory, his friends ran the London and Manchester Marathons, carrying his story and its message into the world.
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at:
c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY.
Contact us at [email protected] or by phone on + 44 (0)333 011 5256