With a diagnosis of Marfan Syndrome in the family come many feelings. Although invisible, these feelings can tangibly affect dynamics and alter relationships. To help us help you, we’d love to know how Marfan syndrome has transformed – or not – you and your family. The challenges met, the problems faced. Things that helped, things that didn’t. Please do watch this video of medical student Laxmi who has spent the summer exploring the psychosocial impact of MFS upon the family, and please complete her one-off questionnaire!
This is an anonymous questionnaire and the results will be published in our November/December newsletter. We realise the survey involves the emotions, and we're here to discuss things if you would like talk further.
Thank you in anticipation of completing the questionnaire.
Deadline for completion: 18 September 2023