Marfan Information Day took supporters on the full journey of Marfan syndrome, from conception to old age, concentrating as much on lifestyle as on medicine. ‘Thoroughly captivating’ was the response from one attendee. Here is the press release for interested parties.

Press Release - Marfan Information Day
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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