Summer in the Sonalee Laboratory

New Research at the Marfan Trust
13 Aug 2021

Dr Child's Casebook: When Your History is a Mystery

A single mother approached our helpline wondering if her adopted daughter may have Marfan syndrome
11 Aug 2021
Members only

Dr Child's Casebook: What Do I Say?

How do you explain Marfan syndrome to friends and colleagues?
4 Aug 2021
Members only

Dr Child's Casebook: Step Forward

A patient with debilitating metatarsalgia is resorting to surgery
28 Jul 2021
Members only

Join Us! Trustee Recruitment!

Let your voice will be heard, become our essential Trustee!
27 Jul 2021

On the Frontline

A Marfan medical student offers us a rare glimpse into life on the hospital ward during COVID's reign
23 Jul 2021
Members only

Dr Child's Casebook: The Long Reach

Is there anyone in our Marfan community with a liking for rowing?
21 Jul 2021
Members only

Dr Child's Casebook: Standing Tall

A parent called to discuss the merits of medical intervention to suppress her daughter’s height
14 Jul 2021
Members only

Dr Child's Casebook: The Anatomy of Protection - Dural Ectasia

Completing the protective encasement around the central nervous system, dura mater is Latin for "tough mother"
8 Jul 2021

Lucy's Blog: Part 2

by Lucy-Alexandra Atkinson
1 Jul 2021

Dr Child's Casebook: The Science of Stroke

Making New Connections
30 Jun 2021
Members only

Breaking News ... Results of the COVID-19 Pandemic Questionnaire

by Mohamed Abdelrazek, Thomas Whittaker, Dr José Aragon-Martin, Dr Anne Child
25 Jun 2021

Research in the Sonalee Lab

by Dr José Aragon-Martin
25 Jun 2021

Fundraising in Tricky Times

by Gurpreet Madan
25 Jun 2021

Marfan Matters: Spring - Summer 2021

Download our Paper Magazine Here
25 Jun 2021

Helpline ... a Lifeline

by Victoria Hilton
25 Jun 2021

Dr Child's Casebook: Bruising and Bleeding

Handle With Care
23 Jun 2021
Members only

Dr Child's Casebook: Growing Up Too Fast, Literally

Are stretch marks and wide armspan possible signs of Marfan syndrome?
16 Jun 2021
Members only

Dr Child's Casebook: The Anatomy of Fatigue

Can Marfan syndrome cause fatigue?
9 Jun 2021

Dr Child's Casebook: On Hand

Is there a connection between Marfan syndrome and Dupuytren’s?
2 Jun 2021
Members only
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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