Dr Child's Casebook: The Engine of Life

Emerging from a 10-hour cardiac operation, a young adult developed an infection prompting his worried parent to call upon Dr Child
20 Jan 2021
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Dr Child's Casebook: Torn Hopes?

A young father-to-be with Marfan Syndrome has concerns that his potentially expanding aorta will tear and stop him from being father to his child
19 Jan 2021
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Dr Child's Casebook: Head in the Clouds

Plagued by little cloud-like particles floating around his field of vision, a 65-year-old Marfan patient immediately sought medical advice
6 Jan 2021
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Dr Child's Casebook: Raising A New Hope

Pregnant with her first baby, an Italian in London sought Dr Child’s advice on childbirth in Marfan syndrome
17 Dec 2020
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Don't Look Back

Our campaign concludes on a note of hope with a story emblematic of the life-enhancing role played by research
11 Dec 2020

‘Remote’ Insight from our Chair

The Trust will be working with and for you, as we all get through this winter, the pandemic and look forward to more comfortable times
10 Dec 2020

Marfan Trust Newsletter Autumn-Winter 2020

Download our Paper Newsletter Here
10 Dec 2020

Fundraising Update Winter 2020

As with all charities, the Marfan Trust had to transform, innovate and adapt to the changing times.
10 Dec 2020

Psychosocial Aspects of Marfan Syndrome

“Let Marfan syndrome be the passenger on your bus, not its driver”
10 Dec 2020
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Research Report

Dr José Aragon-Martin turned lockdown into ‘heads down’, honing his sequencing skills, analysing his datasets and submitting two manuscript
10 Dec 2020

Dr Child's Casebook: Right of Way

Unknown Priority - SHOULD those with Marfan syndrome receive the vaccine ahead of the general population
9 Dec 2020
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Research As Empowerment!

When your past is a blank page you are left feeling powerless. This story highlights the need for more research and awareness of Marfan syndrome
4 Dec 2020

Dr Child's Casebook – Mobilising the Past

A new diagnosis in the family prompts a long reflection on the past.
2 Dec 2020
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Dr Child's Casebook – Feeling Unhinged

A patient wants to know how common tibia dislocations are with Marfan syndrome.
25 Nov 2020
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How Did The Sonalee Laboratory Come About

Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.
19 Nov 2020

Dr Child's Casebook: Walk Tall

A marked deterioration in his young teenage child’s gait and posture propelled a worried parent to the Trust Helpline
18 Nov 2020
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How To Be Happy

Stop kidding yourself that you can control more than you actually can.
13 Nov 2020

Dr Child's Casebook – Off Your Chest

A pressing sense of pressure in their chest recently prompted a member of the public to seek Dr Child’s advice.
11 Nov 2020
Members only

Dr Child's Casebook: Molar Influence

A mother seeks Dr Child's advice about their long term dental care
4 Nov 2020
Members only

Dr Child's Casebook: Validating Vaccines

A parent concerned about vaccinating children against the flu, contacted Dr Child for advice about the Needle versus Nasal debate
28 Oct 2020
Members only
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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