Lucy's Story - The Critique of My Marfan Physique Part IV

by Lucy-Alexandra Atkinson
18 Jul 2022

Dr Child's Casebook: The Bottom Line

Is surgery appropriate?
14 Jul 2022
Members only

Amiyah's Story

A little Marf and her Mum
11 Jul 2022

Dr Child's Casebook: Spinal Conundrum

When to medically intervene ?
7 Jul 2022
Members only

Research Update: Loeys-Dietz Syndrome

by Amy O'Reilly
4 Jul 2022

Books for Children

by Sophia Kazmi
4 Jul 2022

Marfan Matters Magazine: Summer 2022

Download your newsletter now
3 Jul 2022

School Risk Assessment & Recommendations

by the relative of a Marfan teenager
3 Jul 2022

Dr Child's Casebook: With Every Breath

World Pneumothorax Day
30 Jun 2022

Climbing for a Cause

Intrepid 13-year-old George faces his biggest fears for the Marfan Trust
27 Jun 2022

Dr Child's Casebook: One a Day?

The science of supplements
22 Jun 2022
Members only

Stamp for Marfan!

Postage makes pounds for the Marfan Trust
20 Jun 2022

Dr Child's Casebook: Cause for Concern?

Is a small but sudden leap in one's aortic reading necessarily alarming?
15 Jun 2022
Members only

James Griffin

Never was there another who lived so fully
13 Jun 2022

Dr Child's Casebook: Is There Something I Should Know?

Do I have a connective tissue disorder and if so, should I know?
9 Jun 2022
Members only

George Franks-Herbert

A short life lived brightly
6 Jun 2022

Dr Child's Casebook: What to Say?

How to approach the subject of Marfan syndrome?
1 Jun 2022
Members only

Dr Child's Casebook: Centenary Celebration

100th Anniversary
25 May 2022
Members only

Dr Child's Casebook: Spectrum Connection?

Is there a link between Marfan syndrome and autism?
19 May 2022
Members only

Dr Child's Casebook: Primal Fear

How to manage an overwhelming anxiety about death
11 May 2022
Members only
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
Log in | Powered by White Fuse