Niccolo Paganini

11 May 2026

Peter Mayhew

The defining embodiment of Chewbacca
2 May 2026

Navigating Benefits from a Patient's Perspective

by Sydney
20 Apr 2026

Edith Sitwell

A singular poet with Marfan syndrome
13 Apr 2026

A Marathon for Marfan

10 Apr 2026

Lily's Easter Surprise

A chocolate challenge
8 Apr 2026

Professor Rodney Grahame

A tribute
8 Apr 2026

Loeys-Dietz Syndrome: From Rare to Recognised?

See the Signs, Save a Life!
31 Mar 2026

Mary, Queen of Scots

Did the enigmatic, controversial monarch have Marfan syndrome?
30 Mar 2026

You Can Make A Difference!

From patient to teacher - how you can educate the professional
27 Mar 2026

Life with a Connective Disorder

by Scott Stowell
25 Mar 2026

Hans Christian Andersen

Did the creator of fantastical fairy tales have Marfan syndrome?
23 Mar 2026

Gastrointestinal Symptoms in MFS & LDS

21 Mar 2026

Pectus Problems

18 Mar 2026

Raising Professional Awareness

18 Mar 2026

Marfan Syndrome v Loeys-Dietz Syndrome

18 Mar 2026

Dr Child's Casebook: Headaches

15 Mar 2026
Members only

Susan's Story: From COPD to PACES

11 Mar 2026

Paediatric Cardiology Webinar: Recording

with Dr Nitha Naqvi
9 Mar 2026

Webinar with Dietitian Chloe Hall: Recording

Watch the recording now!
5 Mar 2026