Millie's Story

Navigating University with Marfan Syndrome
11 Aug 2025

Sydney's Story

6 Aug 2025

Josie & Greg

How a daughter's diagnosis saved her father's life
4 Aug 2025

Research in the Sonalee Laboratory

28 Jul 2025

Spring-Summer 2025 Newsletter

28 Jul 2025

The Marfan Trust Visits Terumo Aortic in Glasgow

28 Jul 2025

Summer Students

28 Jul 2025

Backache and Marfan Syndrome

25 Jul 2025

Ellie's Story

20 Jul 2025

Dr Child's Casebook: Mind, Body & Marfan Syndrome

13 Jul 2025
Members only

Alcohol Awareness Week: 7 to 13 July

10 Jul 2025

Heat & INR Levels

9 Jul 2025

A Life-Saving Poster

6 Jul 2025

Amiyah Discusses Marfan Syndrome

28 Jun 2025

9 Truths Only People with Marfan Syndrome Will Understand

Whether you’re newly diagnosed with Marfans or you’ve grown up with the condition, there might be a thing or two here that you can relate to.
25 Jun 2025

Heat, Health and Marfan Syndrome

20 Jun 2025

Ed's Story

Pushing the limits for Marfan syndrome awareness
16 Jun 2025

Navigating the Education System with Marfan & Loeys-Dietz Syndromes

Webinar Recording Available
12 Jun 2025

Growing Older with Marfan & Loeys-Dietz Syndromes

Newly Updated & Expanded
6 Jun 2025

Presenting Marfan Trust Research at the ESHG

Elsa Harte unveils her recent study of neonatal Marfan Syndrome
2 Jun 2025
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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