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NEWSFLASH!!!
February Marks Marfan Awareness Month!
Follow the link to our Marfan Awareness Month Page, a trove of useful and interesting material.
Marfan Awareness Month
Dr Child's Casebook: Declaration Dilemma
Should you divulge your health condition when completing job applications?
4 Nov 2022
Members only
Elsa's Story
in pursuit of fitness with Marfan syndrome
1 Nov 2022
Dr Child's Casebook: Time to Heal?
Does a connective tissue disorder delay the healing process?
28 Oct 2022
Members only
Diane Rust
A remarkable woman
17 Oct 2022
Dr Child's Casebook: Maturing with Marfan
Living better with Marfan syndrome
14 Oct 2022
Members only
Hayley's Story
Improving diagnosis of Marfan syndrome
10 Oct 2022
Dr Child's Casebook: Vices and Virtues
Quit the habit?
5 Oct 2022
Members only
Tim's Story
Running for a Friend
3 Oct 2022
Dr Child's Casebook: Quest for Clarity
Obtaining diagnostic certainty
28 Sep 2022
Members only
Lana's Story: a Tale of Three Sisters
Lana's Long Run
26 Sep 2022
Dr Child's Casebook: Point Break?
Are Marfan folk susceptible to fractures?
14 Sep 2022
Members only
Dr Child's Casebook: A Process of Elimination
How to determine the root cause
8 Sep 2022
Members only
Collaborative Trials Prove Losartan/Irbesartan Effective in Marfan Syndrome
4 Sep 2022
Dr Child's Casebook: Weak at the Knees
Should my child's knock knees be treated surgically?
2 Sep 2022
Members only
Charles' Story
A newly diagnosed Marfan with a bright future
31 Aug 2022
Nurse Needed
We seek a Clinical Nurse Specialist in Inherited Cardiac Conditions (ICC)
26 Aug 2022
A Muddy Marfan Challenge: Helen's Quest
Helen faces her fears!
26 Aug 2022
Dr Child's Casebook: Inside My Mind?
Does anxiety emanate from inside or outside?
25 Aug 2022
Members only
Liam's Story
Liam loved life and lived fully
22 Aug 2022
Dr Child's Casebook: Heartfelt Measures
18 Aug 2022
Members only
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The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
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or by phone on + 44 (0)333 011 5256
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