Do They Or Don't They?

Famous, and Famously Fictional, Folk with Marfan Syndrome ...or something similar
15 Mar 2022

Marfan and Me

by Sarah Nuttman
14 Mar 2022

Dr Child's Casebook: Shapes and Sizes

Weighing Up the Ideal?
9 Mar 2022
Members only

Ralph and Bronwen

A story with a (happy) twist in the tale
7 Mar 2022

Dr Child's Casebook: Elective Travel

Can insurers discern the difference between elective and emergency surgery?
4 Mar 2022
Members only

Marfan Awareness Month: The Final Word

Professor John Pepper clarifies the life-saving role of early diagnosis
28 Feb 2022

The GP Who Came To Tea

... and saved a life
25 Feb 2022

Alert Medics To The Features of MFS

Dr Naqvi describes what to watch for as a medic
24 Feb 2022

Dr Child's Casebook: Digestive Dilemmas

The Stomach and Connective Tissue Disorders
23 Feb 2022
Members only

Lucy and Marfan Awareness

A condition as complex as MFS can leave you feeling isolated and alone, especially when doctors cannot help you navigate your medical journey ...
21 Feb 2022

Dr Child's Casebook: Anatomy of a Diagnosis

When symptoms should be treated not separately but as a whole
16 Feb 2022

Steffanie's Story

Steffanie and Angel
15 Feb 2022

Press Release: Marfan Awareness Month

Hiding in plain sight - a deadly secret
13 Feb 2022

Check In; Check It Out

by Dr Anne Child
11 Feb 2022

Dr Child's Casebook: The Age of Uncertainty

Poised awkwardly between childhood and adulthood and left in physical limbo
10 Feb 2022

Signs and Symptoms: a Deadly Secret?

Recognising the visible features of Marfan syndrome is a route to identifying the invisible, potentially deadly, feature...
8 Feb 2022

Jonathan

Marfan Awareness Month 2022
4 Feb 2022

Dr Child's Casebook: Assisted Independence

Can The Marfan Trust write a letter of support for a Personal independence payment?
3 Feb 2022

Dr Child's Casebook: The Feeding Journey

Does anyone have any advice to share on breastfeeding a Marfan baby'?
28 Jan 2022

Fundraiser's Feat - Stuart's Story

Story of Triumph over Adversity
21 Jan 2022
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
Log in | Powered by White Fuse