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Anecdotes and Antidotes
Dr Childs Casebook
Magazines and Newsletters
Marfan Trust News
Useful Information - Other
Dr Child's Casebook: Signs and Symptoms
Making Sense of Symptoms
10 Mar 2021
Dr Child's Casebook: True Cause?
A sudden and suspicious death in the family sparks a search for answers, something that goes beyond the ostensible cause.
3 Mar 2021
Marfan Awareness Month: Our Supporters in the Spotlight!
In this, the grand finale to Marfan Awareness Month we put you, our supporters, in the spotlight!
1 Mar 2021
Natasha's Story: Marfan Awareness Month
Never was the need for greater awareness made more tragically apparent
25 Feb 2021
Myths and Misinformation Debunked! The Vaccine, Explained
A recipient of the vaccine herself, Dr Anne Child dispels disinformation and sets things straight
18 Feb 2021
Dr Child's Casebook: InVisible Inequality
Left seriously fatigued by office systems, and with chronic eye strain and sight problems, a supporter called Dr Child for advise
17 Feb 2021
Christopher’s Story: Marfan Awareness Month
This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition
16 Feb 2021
In Good Company
Marfan syndrome is writ large on the cinema screen, and lurks behind the sensational sounds of Broadway - here are three notable names
11 Feb 2021
Dr Child's Casebook: Bittersweet Blessings?
Anxious about potential side effects of the COVID vaccine, a Marfan supporter finds his worries dispelled by Dr Child
10 Feb 2021
'Awareness Saves Lives: Wayne & Lewis' Story'
This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome
9 Feb 2021
Lost in Translation - Marfan Encyclopaedia
This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!
5 Feb 2021
Dr Child's Casebook: When Two Become Three
A couple approached Dr Child for advice on pre-implantation genetic diagnosis (PGD) in vitro fertilisation (IVF)
3 Feb 2021
Dr Child's Casebook: Forethought Spares Afterthought
Dr Child navigates Pre-Implantation Genetic Diagnosis in her latest Casebook
27 Jan 2021
This article gathers indispensable pieces of advice forming a one-stop Guide to Grief
21 Jan 2021
Dr Child's Casebook: The Engine of Life
Emerging from a 10-hour cardiac operation, a young adult developed an infection prompting his worried parent to call upon Dr Child
20 Jan 2021
Dr Child's Casebook: Torn Hopes?
A young father-to-be with Marfan Syndrome has concerns that his potentially expanding aorta will tear and stop him from being father to his child
19 Jan 2021
Dr Child's Casebook: Head in the Clouds
Plagued by little cloud-like particles floating around his field of vision, a 65-year-old Marfan patient immediately sought medical advice
6 Jan 2021
Dr Child's Casebook: Raising A New Hope
Pregnant with her first baby, an Italian in London sought Dr Child’s advice on childbirth in Marfan syndrome
17 Dec 2020
Don't Look Back
Our campaign concludes on a note of hope with a story emblematic of the life-enhancing role played by research
11 Dec 2020
Fundraising Update Winter 2020
As with all charities, the Marfan Trust had to transform, innovate and adapt to the changing times.
10 Dec 2020
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The Marfan Trust is registered in England and Wales under charity number 328070 at Guy Scadding Building, Dovehouse Street, London SW3 6LY. Contact us at
or by phone on + 44 (0)20 7594 1605
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