Pectus Problems

18 Mar 2026

Dr Child's Casebook: Headaches

15 Mar 2026
Members only

Susan's Story: From COPD to PACES

11 Mar 2026

Paediatric Cardiology Webinar: Recording

with Dr Nitha Naqvi
9 Mar 2026

Webinar with Dietitian Chloe Hall: Recording

Watch the recording now!
5 Mar 2026

Results of our Nationwide Survey

2 Mar 2026

Jonathan

Jonny was only 23
27 Feb 2026

Lyndsey's Story

Fundraising for the Marfan Trust!
26 Feb 2026

Scott's Story

Exploring his surgical options
25 Feb 2026

Maiya's Story

A vibrant young woman
24 Feb 2026

Rachel's Story

Mental health
23 Feb 2026

Andrew Scadding

A tribute
19 Feb 2026

Dyani's Story

17 Feb 2026

Project for Awesome

Vote for the Marfan Trust!
13 Feb 2026

Susan's Story

11 Feb 2026

Newly Published Scientific Paper

Marfan syndrome: diagnosis and management in childhood
11 Feb 2026

A Life-Saving Visit to the Optometrist

Helen's Story
7 Feb 2026

Zoe's Story

5 Feb 2026

Talia and Esmay

Two generations of Marfan syndrome
3 Feb 2026

Marfan Awareness Month

February 2026
31 Jan 2026
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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