News

Let's Start a Conversation about Marfan Syndrome!

Our helpline is approached from time to time by Marfan patients questioning a link between their connective tissue disorder and depression

What is Disability?

Getting to the heart of chest pain

Walking in the shadow of our namesake!

As the first member of the family to be affected by Marfan syndrome, it's natural to ask "why me?"

The agony of outliving a child

We Could Not Have Done It Without You!

To Practise What You Teach

Making Sense of Symptoms

​A sudden and suspicious death in the family sparks a search for answers, something that goes beyond the ostensible cause.

In this, the grand finale to Marfan Awareness Month we put you, our supporters, in the spotlight!

Never was the need for greater awareness made more tragically apparent

A recipient of the vaccine herself, Dr Anne Child dispels disinformation and sets things straight

Left seriously fatigued by office systems, and with chronic eye strain and sight problems, a supporter called Dr Child for advise

This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition

Marfan syndrome is writ large on the cinema screen, and lurks behind the sensational sounds of Broadway - here are three notable names

Anxious about potential side effects of the COVID vaccine, a Marfan supporter finds his worries dispelled by Dr Child

This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome

This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!