What is Marfan Syndrome?

25% of Marfan syndrome patients are the first one affected in the family.
30 Sep 2019
Members only

Invitation to Marfan Association Supporters

The Marfan Association to close on 30th June 2019
12 Jun 2019

Fatigue and Depression in Marfan Syndrome

A 44 year old man with Marfan syndrome rang for advice as he was falling asleep at his desk
7 May 2019
Members only

Trustees Report Spring 2019

Although 2019 finds our Chairman Dr Michael Carr unfortunately indisposed, it is business as usual for the Trust and the Trustees
1 May 2019

Sonalee Laboratory Wish List 2019

The Sonalee Laboratory is sponsored by the Marfan Trust to undertake research in to Marfan syndrome
1 May 2019

Supporter Achievements - Dan Hyde

​Congratulations to Dan Hyde on the great achievement of being appointed as Director of Music at King’s College, Cambridge.
1 May 2019

Helpline Summary

In the past year the helpline has assisted 121 people
1 May 2019

Sonalee Laboratory Update

We have been able to upgrade lots of equipment, attend one of the ASHG Conferences and host a number of students
1 May 2019

Research Director Appeal

Help the Marfan Trust launch its appeal for £300,000 with a bang this #MarfanAwarenessMonth
5 Feb 2019

Going in to Labour with Marfan Syndrome

So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!
6 Dec 2018
Members only

What to Expect When You’re Pregnant with Marfan Syndrome

Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.
5 Dec 2018
Members only

Mince Pies for Marfan

Yummy fundraiser to get your teeth into
27 Nov 2018

Incidence of Pneumothorax in Marfan Syndrome

What is the correct incidence of pneumothorax (free air in the chest cavity that causes the lungs to collapse) in Marfan syndrome?
9 Oct 2018
Members only

Management of Pain in Marfan Syndrome

8 Oct 2018
Members only

AIMS Trial - Results Positive

AIMS trial results show that Irbesartan is well tolerated with very few side effects
10 Sep 2018
Members only

The Acceptability of Prenatal Diagnosis & Pre-Implantation

Latest research can help decisions when starting a family
6 Sep 2017
Members only

Update and Diagnoses

Latest diagnostic approaches
30 May 2017
Members only

Q&A: Joint and Muscle Problems in Marfan Syndrome

Dr Anne Child and Professor Rodney Grahame explain all
29 May 2017
Members only
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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