Our gossipy new series, Anecdotes and Antidotes, discards the doctor’s textbook and puts you, the supporter, in the consultant’s chair. Your words of wisdom and gems of advice have recently been filling our helpline. We want to share and air this precious material publicly, for no one knows Marfan more intimately than you. We’ve gathered a trove of top tips which we’ll dispense on the last Thursday of every month. So, if you’re feeling disconnected, literally (Marfan joints) or figuratively, step this way! Today’s inaugural episode is an antidote, a peaceful poem from Val Greatorex; offering words of solace when confronted by world of Marfan medicalese. Let’s get gossiping!

Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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