Every child should see themselves in the pages of a book. Books help us to navigate life changes and challenges and with a syndrome as rare and as complicated as Marfan, these changes and challenges can be trickier. "Jeremy Wins", by Dr Anne Child, is a hopeful and helpful book about a Marfan boy who triumphs in life by uncovering his hidden talents. It’s a heartening ‘how-to’ for parents and children aged 5+. Buy your copy today!
The Marfan Trust is registered in England and Wales under charity number 328070 at
c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY.
Contact us at [email protected] or by phone on + 44 (0)333 011 5256