Nurse Needed

We seek a Clinical Nurse Specialist in Inherited Cardiac Conditions (ICC)
26 Aug 2022

A Muddy Marfan Challenge: Helen's Quest

Helen faces her fears!
26 Aug 2022

Dr Child's Casebook: Inside My Mind?

Does anxiety emanate from inside or outside?
25 Aug 2022
Members only

Liam's Story

Liam loved life and lived fully
22 Aug 2022

Dr Child's Casebook: Heartfelt Measures

An inherited condition permeates the generations, creating a pattern of development ...
18 Aug 2022
Members only

Holiday Baggage?

Holiday baggage that is mental as well as physical
11 Aug 2022
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Dr Child's Casebook: Diverted Focus

After seemingly successful eye surgery, a supporter is experiencing visual disturbances ...
4 Aug 2022
Members only

Dr Child's Casebook: Heat in the Heart

A recent heatwave put life on hold but can it also endanger life?
27 Jul 2022
Members only

Dressing Tall

The long and the short of it is ...
25 Jul 2022

Dr Child's Casebook: Parallel Connections

In the absence of an LDS support group, patients turn to us for advice
20 Jul 2022
Members only

Lucy's Blog: Part 4

by Lucy-Alexandra Atkinson
18 Jul 2022

Dr Child's Casebook: The Bottom Line

Is surgery appropriate?
14 Jul 2022
Members only

Amiyah's Story

A little Marf and her Mum
11 Jul 2022

Dr Child's Casebook: Spinal Conundrum

When to medically intervene ?
7 Jul 2022
Members only

Books for Children

by Sophia Kazmi
4 Jul 2022

Research Update: Loeys-Dietz Syndrome

by Amy O'Reilly
4 Jul 2022

School Risk Assessment & Recommendations

by the relative of a Marfan teenager
3 Jul 2022

Marfan Matters Magazine: Summer 2022

Download your newsletter now
3 Jul 2022

Dr Child's Casebook: With Every Breath

World Pneumothorax Day
30 Jun 2022

Climbing for a Cause

Intrepid 13-year-old George faces his biggest fears for the Marfan Trust
27 Jun 2022
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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