Trustees Report Spring 2019

Although 2019 finds our Chairman Dr Michael Carr unfortunately indisposed, it is business as usual for the Trust and the Trustees
1 May 2019

Helpline Summary

In the past year the helpline has assisted 121 people
1 May 2019

Research Director Appeal

Help the Marfan Trust launch its appeal for £300,000 with a bang this #MarfanAwarenessMonth
5 Feb 2019

Going in to Labour with Marfan Syndrome

So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!
6 Dec 2018
Members only

What to Expect When You’re Pregnant with Marfan Syndrome

Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.
5 Dec 2018
Members only

Mince Pies for Marfan

Yummy fundraiser to get your teeth into
27 Nov 2018

Incidence of Pneumothorax in Marfan Syndrome

What is the correct incidence of pneumothorax (free air in the chest cavity that causes the lungs to collapse) in Marfan syndrome?
9 Oct 2018
Members only

Management of Pain in Marfan Syndrome

8 Oct 2018
Members only

AIMS Trial - Results Positive

AIMS trial results show that Irbesartan is well tolerated with very few side effects
10 Sep 2018
Members only

The Acceptability of Prenatal Diagnosis & Pre-Implantation

Latest research can help decisions when starting a family
6 Sep 2017
Members only

Update and Diagnoses

Latest diagnostic approaches
30 May 2017
Members only

Q&A: Joint and Muscle Problems in Marfan Syndrome

Dr Anne Child and Professor Rodney Grahame explain all
29 May 2017
Members only