Psychosocial Aspects of Marfan Syndrome

“Let Marfan syndrome be the passenger on your bus, not its driver”
10 Dec 2020
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Dr Child's Casebook: Right of Way

Unknown Priority - SHOULD those with Marfan syndrome receive the vaccine ahead of the general population
9 Dec 2020
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Research As Empowerment!

When your past is a blank page you are left feeling powerless. This story highlights the need for more research and awareness of Marfan syndrome
4 Dec 2020

Dr Child's Casebook – Mobilising the Past

A new diagnosis in the family prompts a long reflection on the past.
2 Dec 2020
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Dr Child's Casebook – Feeling Unhinged

A patient wants to know how common tibia dislocations are with Marfan syndrome.
25 Nov 2020
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How Did The Sonalee Laboratory Come About

Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.
19 Nov 2020

Dr Child's Casebook: Walk Tall

A marked deterioration in his young teenage child’s gait and posture propelled a worried parent to the Trust Helpline
18 Nov 2020
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How To Be Happy

Stop kidding yourself that you can control more than you actually can.
13 Nov 2020

Dr Child's Casebook – Off Your Chest

A pressing sense of pressure in their chest recently prompted a member of the public to seek Dr Child’s advice.
11 Nov 2020
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Dr Child's Casebook: Molar Influence

A mother seeks Dr Child's advice about their long term dental care
4 Nov 2020
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Dr Child's Casebook: Validating Vaccines

A parent concerned about vaccinating children against the flu, contacted Dr Child for advice about the Needle versus Nasal debate
28 Oct 2020
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Dr Child's Casebook: A Sense of Disconnect

Sensing something was partially ‘out of place’ at a critical point in her hand, a member of our community called our helpline seeking respite
21 Oct 2020
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Dr Child's Casebook: A Leaking Lifeline

A member of the public in the wake of her partner’s recurrent pneumothorax asked Dr Child for help having a possible diagnosis of Marfan syndrome
14 Oct 2020
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Hiding in Plain Sight

Our guest blogger, Lucy, describes the challenges of living in near-constant pain, the main source of which is her Marfan syndrome.
8 Oct 2020

Dr Child's Casebook: Measure for Measure

The standard school desk height has remained unchanged over the last 30 years which is an ergonomic nightmare for many
7 Oct 2020
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Why Comprehensive Travel Insurance is important!

​The easing of travel restrictions will prompt many to hop on a jet plane in search of sea, sun and sand. Do you have everything you need?
2 Oct 2020
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Dr Child's Casebook: Perceiving Pain

The brain must detect and interpret pain signals correctly. How then to diagnose the source of the pain?
30 Sep 2020
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Dr Child's Casebook: Chain Reaction

​Trapped in a cycle of viral infections, seemingly without cause, a Marfan patient long known to Dr Child contacted the Trust for advice
23 Sep 2020
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Dr Child's Casebook: Where Do We Go From Here?

​Strongly suspecting the prevalence of a connective tissue disorder running through their family, a member of the public contacted our Helpline
16 Sep 2020
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Latest Statement on Covid-19 from The Marfan Trust

With the newly introduced Rule of Six, we assess what you can – and can’t! – do when meeting friends and family
11 Sep 2020
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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