Research Update

26 Jul 2023

Marfan Matters: Spring/Summer Newsletter

Bursting with news ...
26 Jul 2023

Summer Student Research: Neonatal Marfan Syndrome

Interview with Elsa Harte
21 Jul 2023

Lucy's Blog: Part 7

16 Jul 2023

Dr Child's Casebook: Marfan and Music

When painful joints interrupt the marriage of Marfan and Music
11 Jul 2023
Members only

World Pneumothorax Day 2023

30 Jun 2023

Dr Child's Casebook: The Price of Life

Everything comes at a cost ...
30 Jun 2023

Dr Child's Casebook: Talking Marfan Syndrome

When talking becomes painful
25 Jun 2023
Members only

Chancey and Isabella

A new (Mar)friendship
21 Jun 2023

Dr Child's Casebook: Pain Perspective

When is pain Marfan associated?
18 Jun 2023
Members only

Dr Child's Casebook: Marfan Manifestations

Bruising and blemishes
26 May 2023
Members only

Tom Reveler

A gentle giant
24 May 2023

Scott is Running Towards a Better Future

22 May 2023

We Are Here to Help You!

Mental Health Awareness Week: 15 - 21 May 2023
17 May 2023

Mitral Valve Regurgitation

What is it?
16 May 2023

Westminster Health Forum - Rare Diseases

To secure early diagnosis & improve treatment, WHF needs your participation
16 May 2023

Dr Child's Casebook: Preventative Measures

Anticipating potential problems post medical procedure?
12 May 2023

Dr Child's Casebook: The Next Generation

Planning for the future
2 May 2023
Members only

Tom and Chloe

a beautiful story of love and loss
27 Apr 2023

Dr Child's Casebook: Unexpected Finding

Are cysts a cause for concern?
13 Apr 2023
Members only
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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