Christmas Shop

Our Christmas Shop is now open
2 Dec 2024

Lucy's Blog: Expect the Unexpected

29 Nov 2024

Darren's Story

25 Nov 2024

Dr Child's Casebook: So Many Symptoms

24 Nov 2024
Members only

Francesca's Story

Marfan and Milestones
15 Nov 2024

Friday Fact: Image is Everything

8 Nov 2024

Chronic Pain and Marfan Syndrome

6 Nov 2024

Marfan Trust Guide to Physical Activity

31 Oct 2024

Marfan Information Day 2024

Recordings Available!
30 Oct 2024

Dr Child's Casebook: Sinus Relief

26 Oct 2024
Members only

Saturday Soundbite: Genetics v Genomics

19 Oct 2024

International Patient Symposium: 31 August

Thank You to Our Sponsors
15 Oct 2024

Second Sight

Daniel's Story
14 Oct 2024

World Mental Health Day

10 October 2024
10 Oct 2024

Saturday Soundbite: Stoptober

5 Oct 2024

A Guide to the Eye in Marfan Syndrome

Our new booklet is out today
30 Sep 2024

Lucy's Blog: Part 13

29 Sep 2024

Friday Fact: Eye Health

27 Sep 2024

European Society of Cardiology - New Guidelines

Paedia†ric Aortopa†hy & Marfan Syndrome
24 Sep 2024

Friday Fact: Z-Score

20 Sep 2024