Marfan and Loeys-Dietz Syndrome Online Clinic

25 Apr 2025 3:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

25 Apr 2025 3:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

25 Apr 2025 2:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

25 Apr 2025 2:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

25 Apr 2025 1:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

25 Apr 2025 1:00pm

Parents' Corner

Join the conversation
22 Apr 2025 7:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

4 Apr 2025 3:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

4 Apr 2025 3:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

4 Apr 2025 2:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

4 Apr 2025 2:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

4 Apr 2025 1:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

4 Apr 2025 1:00pm

Joanne's Drop In

25 Mar 2025 7:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

21 Mar 2025 3:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

21 Mar 2025 3:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

21 Mar 2025 2:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

21 Mar 2025 2:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

21 Mar 2025 1:30pm

Marfan & Loeys-Dietz Syndrome Online Clinic

21 Mar 2025 1:00pm

Parents' Corner

Join the conversation
18 Mar 2025 7:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

7 Mar 2025 3:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

7 Mar 2025 3:00pm

Marfan and Loeys-Dietz Syndrome Online Clinic

7 Mar 2025 2:30pm

Marfan and Loeys-Dietz Syndrome Online Clinic

7 Mar 2025 2:00pm

Marfan & Loeys-Dietz Syndrome Online Clinic

7 Mar 2025 1:30pm

Marfan & Loeys-Dietz Syndrome Online Clinic

7 Mar 2025 1:00pm

The Genetics of Marfan & Loeys-Dietz Syndromes

with Professor Anand Saggar, Consultant Geneticist
26 Feb 2025 7:00pm

Joanne's Drop-In

25 Feb 2025 7:00pm

Parent Drop-In

Join the conversation!
18 Feb 2025 7:00pm

Marfan & Loeys-Dietz Syndrome Online Clinic

14 Feb 2025 3:30pm

Marfan & Loeys-Dietz Syndrome Online Clinic

14 Feb 2025 3:00pm

Marfan & Loeys-Dietz Syndrome Online Clinic

14 Feb 2025 2:30pm

Marfan & Loeys-Dietz Syndrome Online Clinic

14 Feb 2025 2:00pm

Marfan & Loeys-Dietz Syndrome Online Clinic

14 Feb 2025 1:30pm

Marfan & Loeys-Dietz Syndrome Online Clinic

14 Feb 2025 1:00pm

Exploring Sex-Specific Outcomes after Aortic Dissection

Quality of Life & Under-Representation of Women
29 Jan 2025 7:00pm

Parent Drop-In

21 Jan 2025 7:00pm

Parent Drop-In

Join the conversation!
10 Dec 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
26 Nov 2024 7:00pm

Parent Drop-In

Join the conversation!
19 Nov 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
22 Oct 2024 7:00pm

Marfan Information Day

12 Oct 2024 9:15am

Parent Drop-In

Join the conversation!
8 Oct 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
24 Sep 2024 7:00pm

Parent Drop-In

Join the conversation!
10 Sep 2024 7:00pm

London Patient Symposium

Living Better with Marfan, Loeys-Dietz, & VEDS
31 Aug 2024 9:00am

Parent Drop-In

Join the conversation!
18 Jul 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
25 Jun 2024 7:00pm

Parent Drop-In

Join the conversation!
11 Jun 2024 7:00pm

Heads, Hearts & Minds: The Psychosocial Effects of Living with Marfan, Before & After Heart Surgery

From award-winning cardiovascular nurse Rosalie Magboo
22 May 2024 7:00pm

Pectus Matters

Pectus Excavatum: navigating the emotional and medical journey
17 May 2024 12:30pm

Parent Drop-In

Join the conversation!
14 May 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
30 Apr 2024 7:00pm

Parents' Drop-In

Join the conversation!
16 Apr 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
2 Apr 2024 7:00pm

Parent Drop-In

Join the conversation!
19 Mar 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
27 Feb 2024 7:00pm

Parent Drop-In

Join the conversation!
20 Feb 2024 7:00pm

Medical Management of Marfan Syndrome

with Consultant Cardiologist Dr Alex Pitcher
5 Feb 2024 7:00pm

Joanne's Monthly Drop-In

Pop by for a chat about all things Marfan
30 Jan 2024 7:00pm

Parent Drop-In

Join the conversation!
23 Jan 2024 7:00pm

Parent Drop-In

Join the conversation!
12 Dec 2023 7:00pm

Joanne's Monthly Drop-In

Join the conversation!
28 Nov 2023 7:00pm

Parent Drop-In

Join the conversation!
14 Nov 2023 7:00pm

Joanne's Monthly Drop-In

Join the conversation!
31 Oct 2023 7:00pm

Parent Drop-In

Join the conversation!
17 Oct 2023 7:00pm

Marfan Information Day

takes you on the full journey of Marfan syndrome
7 Oct 2023 9:15am

Joanne's Monthly Drop-In

26 Sep 2023 7:00pm

Gastrointestinal Symptoms in Marfan Syndrome

Join our discussion
15 Sep 2023 12:00pm

Parent Drop-In

Join the conversation!
12 Sep 2023 7:00pm

Parent Drop-In

18 Jul 2023 7:00pm

Parent Drop-In

20 Jun 2023 7:00pm

A Lunchtime Drop-In Conversation with the Marfan Trust

30 May 2023 12:00pm

A Lunchtime Drop-In Chat with the Marfan Trust

25 Apr 2023 12:00pm

A Lunchtime Drop-In Chat with the Marfan Trust

4 Apr 2023 12:00pm

A Lunchtime Drop-In Session with the Marfan Trust

28 Feb 2023 12:00pm

The Eye in Marfan Syndrome

A lunchtime discussion with Consultant Ophthalmologist Mr Aman Chandra
13 Nov 2022 12:30pm

Marfan Information Day

Save the Date: Saturday 8 October 2022
8 Oct 2022 9:30am

PEARS Webinar

Getting to the heart of the matter, PEARS pioneer Tal Golesworthy will be discussing his invention
12 May 2022 12:30pm

Marfan Information Day

Purchase your ticket today to avoid disappointment!
9 Oct 2021 9:30am

14/07/21 - Pregnancy and IVF PGD Webinar

Book now and join us for our first ever Webinar
14 Jul 2021 12:30pm

Captain Tom 100

Follow in Captain Sir Tom Moore's footsteps. Conceptualise a challenge, do it 100 times and raise funds for the Marfan Trust
30 Apr 2021 12:00am

Watch This Space - New Events Coming Soon!

31 Dec 2020 10:00am

Silent Auction 2020

​Marfan Trust's 2020 Silent Auction is Now Live!
18 Nov 2020 10:00am

Marfan Syndrome Information Day

Saturday, 3 October 2020, 09.15 – 16.20
3 Oct 2020 9:15am
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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