Marfan Information Day

Taking supporters on the full journey of Marfan syndrome from conception to old age with everything in between, this year's Information Day comprehensively discusses the condition.  Expert speakers will present and take questions throughout the conference, and there'll be a chance to meet fellow supporters during themed coffee breaks.

(This conference will be held on Zoom and recorded).

09:15 - 09:30 Registration

09:30 - 09:45 Welcome, from Dr Anne Child MD FRCP

09:45 - 10:15 Pregnancy in Marfan Syndrome, Dr Isma Rafiq, Consultant Cardiologist, HIgh Risk Pregnancy Service

10:15 - 10:45 Contact and Scleral Lenses in Marfan Syndrome, Yetunde Obadeyi BSc (Hons) MCOptom MSc DipTp (IP) Glau Higher Cert

10:45 - 11:15 Treatment of Descending Aortic Dissection, Professor Christoph Nienaber, Consultant Cardiologist, Royal Brompton Hospital

11:15 - 11:35 COFFEE BREAK

11:35 - 12:05 Gastrointestinal Problems & Marfan Syndrome, Professor Anton Emmanuel, University College Hospital

12:05 - 12:20 Transitioning from Paediatric to Adult Care, Victoria Hilton & Joanne Jessup

12:20 - 13:05 LUNCH

13:05 - 13:35 Exercise & Marfan Syndrome, Dr Sabiha Gati, Consultant Cardiologist, Royal Brompton Hospital

13:35 - 14:35 Research at the Marfan Trust (13:35 - 13:50: Dr Jose Aragon-Martin; 13:50 - 14:05: Neonatal Marfan Syndrome, Elsa Harte; 14:05 - 14:20 Psychosocial Impact of MFS on the Family Laxmi Thileepan; 14:20 - 14:35 GI Issues in MFS Simon Khatra)

14:35 - 14:55 Presentation of Daniel Finkletaub Prize, Carole Finkletaub / Presentation of Michael Carr Award / Presentation of Sir Sebastian Roberts Award

14:55 - 15:10 TEA BREAK

15:10 - 15:40 Intensive Nursing Post Surgery, Joanne Jessup

15:40 - 16:10 Ageing Well with Marfan Syndrome, Dr Anne Child MD FRCP

16:10 - 16:20 Closing Remarks