An annual staple, our remote Information Day this year will feature talks on a wide array of subjects from gene therapy and the vascular implications and treatment of Marfan & Loeys-Dietz syndromes, to chest wall surgery. Occupational therapist Natasha Woodgate will discuss everyday life with these connective tissue disorders, offering an abundance of practical tips and advice. Sign up today! 

Book tickets

Ticket Cost Quantity
Free Ticket Free
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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