A rare condition, Marfan syndrome can leave you feeling isolated. Being the parent of a child with Marfan can sometimes feel like a solitary journey, especially when your child is the first member of the family to have the condition. Our Parent webinar is a chance to meet similarly situated parents and discuss common concerns in a supportive environment. Join us!

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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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