Saturday 8th October 2022
9.30am - 4.30pm

Our third virtual conference for folk with, or affected by, Marfan syndrome, as well as interested physicians, has been arranged for Saturday the 8th of October.  Informed by our helpline, the emphasis this year is on pain management, and support at school.

The preliminary programme includes:

Mr Tal Golesworthy, C Eng MEI MRSC:  
PEARS UPDATE FROM WORLDWIDE EXPERIENCE

Mr Ben Clarke, Vitreoretinal Consultant, Gloucestershire Hospitals NHS Trust:
THE EYE IN MARFAN SYNDROME

Dr Fariborz Neirami, Consultant in Pain Medicine and Spinal Intervention, King's College Hospital:
MANAGEMENT OF BACK PAIN

Toby Winkworth BSc Podiatry (Hons), P.G Cert in Sports Biomechanics, H.C.P.C, Royal College of Podiatry:
ORTHOTIC MANAGEMENT OF FEET IN MARFAN SYNDROME

Speaker TBC:
HOW TO NAVIGATE SCHOOLS AND TRANSITIONS WITH MARFAN SYNDROME

Drs Fleur van Dijk & Deborah Morris-Rosendahl
HOW TO DIAGNOSE MARFAN SYNDROME

Dr José Aragon-Martin, Director of Sonalee Laboratory, Marfan Trust
GENETIC CAUSES OF DISLOCATED LENS IN MFS - RESEARCH APPROACH

Carole Finkletaub
PRESENTATION OF DANIEL FINKLETAUB AWARD

(Further speakers to be announced  soon, and details including speakers' bios to follow shortly.)

Book tickets

Ticket Cost Quantity
Members: Early Bird - Valid until 16 September £10.00
Non-Members: Early Bird - Valid until 16 September £11.50
The Marfan Trust is registered in England and Wales under charity number 328070 at c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
Log in | Powered by White Fuse