Living with Marfan and Loeys-Dietz Syndromes

A day filled with expert information, peer support and so much more, our Patient Symposium in Birmingham is open for registration. A collaboration with Birmingham Women's and Children's Hospital, the event will feature specialists discussing how to manage the symptoms of Marfan and Loeys-Dietz syndromes, but just as importantly will offer the opportunity to mix with fellow patients, ask questions direct of the expert and share stories. A dedicated playroom will be available for children, along with a fun space designed for teenagers. Places are limited – sign up today!

Food will be provided throughout the day, including breakfast and lunch.

(We are offering travel bursaries for low-income families – please email [email protected] for more information.)

The full programme for the day will be announced soon and will include presentations on:

• The Genetics of Marfan & Loeys-Dietz Syndromes
• Paediatric & Adult Cardiology
• Managing Pain and Musculoskeletal Problems
• Cardiac Surgery
• Advocacy
• Mental Health
• Transitioning from Paediatric to Adult Care
• Pregnancy
• Ophthalmology

- Many of the sessions will be informal and there will plenty of time to mix and mingle with fellow supporters.