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Information leaflets

Browse information leaflets for sale. Information leaflets

COVID-19

How Marfan syndrome relates to COVID-19.
Find out more

Support Groups

Connect with others having a similar experience to you.
Find a support group

Helpline

Call on + 44 (0)333 011 5256

Email us or find us on Facebook or Twitter.

Famous Folk with Marfan Syndrome

6 Mar 2023

Marfan Syndrome V. Loeys-Dietz Syndrome

6 Mar 2023

A to Z of Marfan Medicalese

This article elucidates and celebrates Marfan medicalese in a comprehensive list!
21 Sep 2022

Diagnosis & Treatment

Early diagnosis and treatment is vital
10 Jul 2022

Dressing Tall

The Long and Short of it is ...
10 Jul 2022

Endocarditis Prevention

Endocarditis Prevention Advice & ICE Card
10 Jul 2022

Living with Marfan Syndrome

Regular checks with specialists are key
10 Jul 2022

Marfan Syndrome in Children

Manage children's care via a paediatrician
10 Jul 2022

Medical Concerns

Medical problems, treatment & management
10 Jul 2022

Regional Genetics Centres

Find UK Regional Genetics Centres
10 Jul 2022

Related Disorders

Rule out related disorders with a definitive diagnosis
10 Jul 2022

Starting a Family

Understand potential risks & options beforehand
10 Jul 2022

Travel Insurance Information

Specialist Travel Insurance and Insurers
10 Jul 2022

Useful Information - Other

Other Helpful Groups and Organisations
10 Jul 2022

What are the signs of Marfan Syndrome?

Knowing the signs of Marfan syndrome can save lives
10 Jul 2022

Marfan Awareness Month: February 2022

"Once seen never forgotten" Passing frequently unnoticed through GP surgeries and A&Es is a potentially life-threatening condition
1 Feb 2022

Bereavement Advice

This article gathers helpful pieces of advice to form our Guide to Grief
26 Apr 2020
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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