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Local Marfan/Loeys-Dietz
In-Person Support Groups

Meet others similarly situated
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Click here to find your local group

Related Groups & Organisations

Connect with others having a similar experience and learn more.
Find a related organisation/Facebook Forum

Helpline

Call on + 44 (0)333 011 5256

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Connor's Story

Navigating heart surgery
8 May 2025

Managing Mental Health with Marfan Syndrome

by Anna Gould
8 May 2025

Managing Stress

8 May 2025

World Mental Health Day

8 May 2025

Guide to Physical Activity with Marfan and Loeys-Dietz Syndromes

25 Apr 2025

Medical Management of Marfan Syndrome

25 Apr 2025

Paediatric Cardiology Webinar

With Dr Nitha Naqvi
25 Apr 2025

The Psychosocial Effects of Marfan Syndrome Upon Families

25 Apr 2025

Genetics Appointment: How to Prepare

24 Apr 2025

Going in to Labour with Marfan Syndrome

So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!
15 Apr 2025

Lucy's Blog: Expect the Unexpected

15 Apr 2025

Lucy's Blog - Part 10

Unexpected Finding
15 Apr 2025

Lucy's Blog - Part 11

A new diagnosis and a new physio
15 Apr 2025

Lucy's Blog: Part 12

15 Apr 2025

Lucy's Blog: Part 13

15 Apr 2025

Lucy's Blog: Part 2

by Lucy-Alexandra Atkinson
15 Apr 2025

Lucy's Blog: Part 3

by Lucy-Alexandra Atkinson
15 Apr 2025

Lucy's Blog: Part 4

by Lucy-Alexandra Atkinson
15 Apr 2025

Lucy's Blog: Part 5

by Lucy-Alexandra Atkinson
15 Apr 2025

Lucy's Blog: Part 6

15 Apr 2025
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at info@marfantrust.org or by phone on + 44 (0)333 011 5256
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