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Getting a Diagnosis
How to approach securing a diagnosis of Marfan Syndrome
24 Nov 2025
Diagnosis and Treatment
Approaching a diagnosis of Marfan syndrome can somtimes prove tortuous. Here is our step-by-step guide.
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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
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or by phone on + 44 (0)333 011 5256
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