Skip to title Skip to main content
We gather anonymised analytics data on website usage unless you opt out.
Marfan Trust
  • Log in
  • Donate
  • About
  • Resources
  • Events
  • News
  • Membership
  • Get Involved
  • Shop
  • Donate

Resources

Category: Patient Stories
Skip to main content

  • Articles
  • A to Z of Marfan Medicalese
  • Blog
  • Children and Family
  • Diagnosis and Treatment
  • Dressing Tall - Clothing for Tall Types
  • Endocarditis
  • Famous Folk with Marfan Syndrome
  • Fatigue
  • Finance
  • Grief Advice
  • Information Leaflets
  • Lifestyle and Exercise
  • Loeys-Dietz Syndrome
  • Managing Marfan Syndrome
  • Marfan Awareness Month
  • Marfan Syndrome
  • Marfan Syndrome V Loeys-Dietz Syndrome
  • Medical Concerns
  • Mental Health
  • Nationwide Survey
  • Patient Stories
  • Policies
  • Pregnancy
  • Regional Genetics Centres
  • Related Disorders
  • Signs and Symptoms
  • Starting a Family
  • Supporter Stories
  • Travel Insurance Information
  • Treatment and Managment
  • Useful Information - Other
  • Webinars

Rachel's Story

Mental Health Awareness
15 May 2026

Connor's Story

Navigating heart surgery
14 Jan 2026

Talia's Story

14 Jan 2026

Wayne's Story

From misdiagnosis to diagnosis
14 Jan 2026

Darcy's Story: My PEARS Journey

A first-hand patient experience
13 May 2025

Darren’s Story

13 May 2025

Rachel's Story

Expect the Unexpected
13 May 2025

Reece's Story

13 May 2025
  • Subscribe
  • Contact
  • Privacy Policy
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
Log in | Powered by White Fuse