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Information leaflets

Browse our information leaflets.
Information leaflets

Local Marfan/Loeys-Dietz
In-Person Support Groups

Meet others similarly situated
and have a conversation.
Click here to find your local group

Related Groups & Organisations

Connect with others having a similar experience and learn more.
Find a related organisation/Facebook Forum

Helpline

Call on + 44 (0)333 011 5256

Email us or find us on FacebookX,
Instagram or Linkedin.

School Risk Assessment & Recommendations

by the relative of a Marfan teenager
8 Apr 2025

Ectopia Lentis

What is it?
3 Apr 2025

Eye Health

3 Apr 2025

Ghent Criteria

3 Apr 2025

Infective Endocarditis

Order your alert card today
3 Apr 2025

Know Your Numbers

How to manage get your blood pressure
3 Apr 2025

Kyphosis v. Scoliosis

What's the difference?
3 Apr 2025

Marfanoid Habitus

3 Apr 2025

Pectus Problems

3 Apr 2025

Systemic Score

3 Apr 2025

Policies

8 Jan 2025

Chronic Fatigue

24 Nov 2024

Information Guides

22 Oct 2024

Extra Help

Charity funding for people affected by Marfan & Loeys-Dietz syndromes
25 Sep 2024

Life Insurance

Insurance for those with a Connective Tissue Disorder
25 Sep 2024
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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