Her heart transcended boundaries, and her cooking was beyond compare. Nattiya was a remarkable woman who died from complications of undiagnosed Marfan syndrome, a condition later identified in her daughters. In her memory, her daughter Jasmin is running the Budapest Marathon to raise awareness and improve treatment. Read their story.
In honour of my mum, I will be running Budapest Marathon 2026 to fundraise for The Marfan Trust to raise awareness of Marfan syndrome and to support further research. Over 18,000 people in the UK are affected by Marfan syndrome in the UK, with a significant number remaining undiagnosed.
Tragically, my mother Nattiya Sheanon passed away on 18th April 2025 after an unexpected aortic aneurysm. During surgery it was realised that she most likely had Marfan syndrome, a condition that her daughter, Sophie had been investigated for but not confirmed.
Since my mum’s passing, genetic testing has confirmed that she, my sister Sophie and I have Marfan syndrome. We are now under hospital care and are being monitored to prevent future heart complications.
My mum's heart stretched far and wide from her home in Thailand to her second home in England. She radiated compassion beyond the need for words. Her love was unyielding. If you ever tried her cooking, consider yourself extremely lucky.
My mum’s spirit will enrich our lives, and her memory will continue eternally.
I hope that this fundraiser will help other families affected by Marfan Syndrome and help save lives.
Please celebrate Nattiya’s life and donate to The Marfan Trust in memory of her.
