The Marfan Trust
for people with Marfan & Loeys-Dietz Syndromes
The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -
Information Leaflets Contact us
C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY
Just a few moments of your insight can transform the future for Marfan and Loeys-Dietz syndrome patients! Please spare 20 minutes to take part in our anonymous survey about your experiences of care. Your input will help us shape better services and support for people living with these conditions.
We would love to hear from you if:
*you support someone with Marfan Syndrome or Loeys-Dietz syndrome:
*you live with the condition yourself
*you live with someone who has the condition *you are aged 16 or over
*you live in the UK
