The Marfan Trust - Supports those with Marfan syndrome and their families - - Provides educational information to raise awareness of Marfan syndrome - - Undertakes medical research to enable better treatment for patients -
The Marfan Trust is registered in England and Wales under charity number 1198847 at
c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY.
Contact us at [email protected] or by phone on + 44 (0)333 011 5256