A day devoted to discussion of all things Marfan syndrome, from matters of the heart, eyes, and skeleton, to advice on psychological support, pregnancy and more! Below are the individual recordings.  

Chairman's Welcome

Michael Heath, Chair, Marfan Trust

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Update on Aortic Surgery - options and risks 

Professor Ulrich Rosendahl, Consultant Cardiac Surgeon, Royal Brompton Hospital

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Care of Children’s Eyes

Mr Robert Henderson, Consultant Paediatric Ophthalmologist, Great Ormond Street Hospital and Moorfield's Eye Hospital

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Pregnancy and Prenatal Genetic Diagnosis

Audrey Dearing, Genetic Counsellor, Guy's & St Thomas' Hospital Reproductive Services

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Psychological Support for all Ages

Dr Zoe Berger, Consultant Clinical Psychologist, Psychological Services, Great Ormond Street

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Sonalee Laboratory, Research Update 

Dr José Aragon-Martin, Research Director of the Sonalee Laboratory

Summer Studentships in the Sonalee Laboratory:

Lauren Lau, Qasim Mansoor Ashraf and Husnaa Fathima Ali Azamathullah Khan

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Update on PEARS Personalised External Aortic Root Support

Tal Golesworthy, Chartered Engineer,  Inventor of the PEARS Procedure

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COVID-19 Vaccination in Children

Dr Nitha Naqvi, Consultant Paediatric Cardiologist, Royal Brompton Hospital

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Is a Slim Build a Protective Factor in the COVID-19 Pandemic? 

Mohamed Abdelrazek and Thomas Whittaker, Medical Students of Cardiff University

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Presentation of Daniel Finkletaub Prize

Carole Finkletaub

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The Role of Desmosine in Aortic Aneurysm  

Dr Anna Choy, Consultant Cardiologist & Clinical Senior Lecturer, Dundee University

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Advances in Scoliosis Management for Children, Young Adults, and Older Patients

Mr Hilali Noordeen, Royal National Orthopaedic Hospital

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Updating Marfan Trust Literature and Helpline Analysis

Dr Anne Child, Medical Director, Marfan Trust & Victoria Hilton, Marfan Trust

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Fundraising Activities

Gurpreet Madan, Fundraising Manager, Marfan Trust

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Closing Remarks

Michael Heath, Chair, Marfan Trust

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The Marfan Trust is registered in England and Wales under charity number 328070 at Guy Scadding Building, Dovehouse Street, London SW3 6LY. Contact us at [email protected] or by phone on + 44 (0)20 7594 1605
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