Our panel of regular advisors all have an interest and/or specialisation in Marfan syndrome and we call on them regularly to help us answer supporter questions and provide useful information. They all support and contribute to the work of the Marfan Trust. The advisors are:
Mr Conal Austin
Consultant Cardiothoracic Surgeon, Guy’s and St Thomas’ Hospital, Westminster Bridge Road, London SE1 7EH
Mr Aman Chandra
Consultant Ophthalmic Surgeon, Ophthalmology Department, BMI Southend Private Hospital 15-17 Fairfax Dr, Westcliff-on-Sea, Southend-on-Sea SS0 9AG
Professor David Charteris
Consultant Ophthalmic Surgeon, Vitreo-Retinal Unit, Moorfield Eye Hospital, 162 City Road, London EC1V 2PD
Dr Elena Cervi
Paediatric Cardiologist, Great Ormond Street Hospital, Great Ormond Street, London, WC1N 3JH
Dr Helen Cohen
Rheumatologist Consultant, Royal National Orthopaedic Hospital, Brockley Hill, Stanmore, HA7 4LP
Professor Anton Emmanuel
Professor in Neuro-Gastroenterology, University College Hospital, 235 Euston Rd, London NW1 2BU
Dr Yaso Emmanuel
Consultant Cardiologist, St Thomas’ Hospital, Westminster Bridge Road, SE1 7EH
Dr Sabiha Gati
Sports Cardiology, Royal Brompton Hospital, Sydney Street, London, SW6 6NP
Mr Robert Henderson
Consultant Paediatric Ophthalmic Surgeon at Great Ormond Street Hospital for Children, NHS Foundation Trust (Great Ormond Street, London WC1N 3JH) & Moorfields Eye Hospital (162 City Road, London EC1V 2PD)
Mr Ian Hunt
Thoracic Surgeon, Department of Thoracic Surgery, St George’s Hospital, Blackshaw Road, London SW17 0QT
Dr Lucy Hyde
Dental Consultant, C/O Marfan Trust, 24 Oakfield Lane, Keston, Kent, BR2 6BY
Professor Marjan Jahangiri
Department of Cardiothoracic Surgery, St George’s Hospital, Blackshaw Road, London SW17 0QT
Dr Juan Pablo Kaski
Paediatric Cardiologist, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London WC1N 3JH
Dr Hanadi Kazkaz
Rheumatology Department, University College London Hospital, 250 Euston Road, London NW1 2PG
Mr Tahir Khan
Consultant Paediatric Orthopaedic Surgeon, Royal National Orthopaedic Hospital, Brockley Hill, Stanmore, Middlesex HA7 4LP / Bolsover Street, London W1W 5AQ
Dr Deborah Morris-Rosendahl
Molecular Genetics, Royal Brompton and Harefield Aortic Centre London, Sydney Street, London SW3 6NP
Dr Nitha Naqvi
Cardiologist (Paeds), Royal Brompton Hospital, Sydney St, London, SW6 6NP
Dr Fariboz Neirami
Pain Specialist, Kings’ College Hospital, Denmark Hill, London, SE5 9RS
Prof Christoph Nienaber
Professor of Cardiology, Royal Brompton Hospital, Sydney Street, London, SW6 6NP
Mr Mohammed Noordeen
Orthopaedic Surgery (Paeds), Brockley Hill, Stanmore, Middlesex, HA7 4LP and 45-51 Bolsover Street, London W1W 5AQ
Mr Marios Papadopoulos
Academic Neurosurgery Unit, St George’s Hospital, Blackshaw Road, London SW17 0QT
Professor John Pepper
Professor of Cardiac Research, Royal Brompton Hospital, Sydney Street, London SW3 6NP
Dr Matina Prapa
Genetics, Royal Brompton Hospital, Sydney Street, London, SW6 6NP
Dr Isma Rafiq
Consultant Cardiologist, Royal Brompton & Harefield Hospitals, Sydney Street, London SW3 6NP
Mr Ulrich Rosendahl
Department of Surgery, Royal Brompton and Harefield Aortic Centre London, Sydney Street, London SW3 6NP
Ms Karen Sage
The London Bridge Fertility, Gynaecology and Genetics Centre, 1 St Thomas Street, London SE1 9RY
Dr Anand Saggar
Clinical Genetics (Private), 119 Harley St, London W1G 9PF
Prof Bindy Sahota
ENT Surgeon Consultant, University Hospitals Derby and Burton NHS Trust, Uttoexter Road, Derby, DE22 3NE
Professor Anita Simonds
Emeritus Professor of Respiratory & Sleep Medicine, Imperial College, 49 Prince Consort Rd, South Kensington, London SW7 2BH
Dr Graham Stuart
Congenital Heart Disease Centre, Bristol Royal Hospital for Children, Upper Maudlin Street, Bristol BS2 8BJ
Dr Fleur van Dijk
Consultant Geneticist, Clinical Genetics (EDS/Marfan) North-West Thames Regional Genetics Unit, Northwick Park Hospital, Harrow, Middlesex
Dr Fiona Walker
Cardiologist, Barts Heart Centre, West Smithfield, London EC1A 7BE
